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Rheumatoid Arthritis
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Posted 4/22/2009 9:15 AM (GMT -5)
confused  well I went to see my rhuemy yesterday.  The results to my MRI were back.  It showed that there is lotsa wear and tear in my back, but not what she was looking for.  Therefore we are still at a loss as to what is wrong with me.  I KNOW I AM IN PAIN, and that there IS something wrong! I just WISH my rhuemy could figure it out!  I am getting upset that she cant.  I dont go see her until October now...unless I get new symptoms I guess.  Now she wants me to go see my family doctor and just try and work out pain medications to help with managing the pain, and stay on my 400mg of plaquenil daily.  So needless to say I am frustrated once again!

She also told me that being out in the sunshine this summer to load up on the sunscreen (which all doctors do....) but to do this because being outside in the warm sun will make me sore and achy.  Has anyone else heard of that?... because cold rainy/snowy days make me ache. Being inside where its warm helps, so I would have assumed being outside in the nice warm sunny day cool would be a good thing.  Doesnt make sense to me....

I will be using sunscreen anyway this summer as I will be bald!!  My sister and I have challenged our local public school to raise $1000 to donate to Cancer Society, and said we would shave our heads completely bald if they raise it. WELL....they have raised that much and more!  Not sure of the exact amount yet, but am sure as of Monday April 27th we will have no hair!  For such a great cause!!!  But sunscreen wasnt really the issue, as all doctors warn you to wear it, the being achy in the nice weather is a concern. Kinda makes me feel like shes saying become a shut-in because ALL weather makes you achy and sore...

well look at me I have wrote a book...sorry...just flustered again I guess....Hope you all have a great week-end. Happy Hump Day!! ((gentle hugs))

Posted 4/25/2009 7:35 AM (GMT -5)
Huh? Sunshine actually makes me feel BETTER. That's odd. But you know, now that I think about it. The heat from the sunshine makes my fingers swell. Seems you can't win for losing is what comes to mind!

But I hear you on the frustration. I am there also. I've been to a rheumy, a pain specialist, a neurologist and a primary doctor and not a single one can find the cause of my LOWER back pain and spasms. I have been poked, prodded, scanned and tossed around that it's not even funny anymore! So when I found out that I have 2 bulging discs in my neck that explained my neck and UPPER back pain I almost jumped for joy because someone found something after suffering with it for 5 years. It is just so darn frustrating that no one has an answer for you!

I think it's awesome what you are willing to do for the Cancer Society! Well done!
Posted 4/25/2009 8:10 AM (GMT -5)

Red_34 Thank-you for the post.  I never thought of the swelling being a problem in the heat, so I guess that could be part of the problem...

But Mainly I am just frustrated like you said.  I know doctors are human too, but people (me included I guess) assume that they studied for so long and have been doctors for an amount of time, and should be able to come up with answers after putting the patient thru what feels like azillion tests.  I will plug along and hope one day SOON they will find an answer.

Also thanks for your support on the Cancer Society thing. smilewinkgrin

Posted 4/25/2009 9:56 AM (GMT -5)
I know we hope that the doctors had all the answers. I actually wish that I had a doctor like on that TV show House MD :) Minus the sarcastic and negative attitude that is! I just plug along too and I can't help but think that by not finding the cause of my pain is actually going to make it worse. THEN when it gets worse and actually shows up any sort of test that it will be too late.
Posted 4/25/2009 10:00 AM (GMT -5)
Wow we really do think alot alike!  I LOVE HOUSE he is SOOO Mean but he knows his stuff and is to the point!!

Also I feel like when and if a diagnosis is made it will be too late and I will be all crippled and in a wheelchair....or something..

Good Luck!((gentle hugs)) Hope you have a great weekend.

Posted 4/25/2009 10:05 AM (GMT -5)
TayIsa, Plaquenil is one of the medications that increases your sensitivity to the sun. If the heat helps your pain, try staying in the shade as much as possible in addition to sunscreen at first. Check out your skin's reaction by limiting sun at first. Some people have no increased sensitivity while others develop very severe sunburns with brief exposure. Hopefully you will be one of the lucky ones who tolerates the sun with no problem!
Posted 4/25/2009 3:09 PM (GMT -5)
Judilyn, Thank-you for clarifying that it is my Plaquenil that will be a "problem"being in the sun. It just didnt make sense. I will be sure to moderate my sun, but I was (just starting) it last summer and sun burning was not an issue. I will be sure to check out sensitivity this year as it may be different. Thanks again. :)
Posted 4/25/2009 6:13 PM (GMT -5)
TayIsa,

I haven't been able to keep track of this thread. Why are you having to
do over your MRI. Will you have to pay for the first one?

I had my shoulder MRI'd I was given a sedative and pain medicine IV, but
still I couldn't stay still enough. I think it's impossible!

Next time the doctor said he'd give me a general anesthesia. I don't want that.
I can't pay for it AGAIN.

Thank You,
Pamela
Posted 4/25/2009 7:15 PM (GMT -5)
Pamela Neckpain,
I am sorry I got you confused. I only had one MRI. I was afraid I would move and make it so I would have to have a "do over" but luckily once was enuff. I did not have to pay for my MRI as I live in Ontario Canada and OHIP covered it.
I first posted this thread on information on what to expect at an MRI as I was afraid and never had one done before. Then after I had it done, and got results I posted again to tell those who had been kind enough to advise me of what the results said.
I am sorry that you have to go for another MRI. It is a very closed in space and takes a long period of time to get done. Mine was an hour long. I can see where it would be painful and distressing for some people. I personally concentrated on the music in the headphones they gave me. They had the radio staion on but very low so I had to concentrate to hear the song to hum along. I was soo nervous that the time seemed to drag, plus I stayed tense so I had to stay in an awkward position for the whole time because I forgot to relax...right away at the beginning and was afraid to relax and move causing the doctors to NEED the do-over.
I hope this helps you explain my chaotic posts. take care. ((gentle hugs))
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