Posted 10/14/2017 3:37 PM (GMT -5)
These are baffling and difficult diseases. We often seek out 2nd and 3rd opinions b/c we want a definitive answer. They can't give it to us in most cases. It's very frustrating.
I hope they can get you out of pain. I had a positive ANA, high sed rate but other tests negative. X rays showed erosions in my hands. Then, a few years later, a lip biopsy showed I have Sjogrens. I want to slap the one young doc that I saw a few years back who said I just had fibromyalgia. I wanted my money back and to cuss his 18 year old butt out! He had the gall to disagree with 3 other rheumies who had four times the experience that he did. Some can be so dismissive and not read your whole history and THINK about things. If you respond to prednisone, it's inflammatory, not fibromyalgia. Ok, I am off my soap box. Good luck to you.