sjorgrens

I was diagnosed with sjorgens 3 years ago after several years of pain - I had prednisolone for about 10yrs when I was 30 - I am now 54yrs and have pain, very dry mouth, eyes and skin - I take hydroxychloriquine twice a day, an anti histamine first thing in the morning, together with tramadol pain killer - I have to wake 1 hour before I need to get up to take the meds in the morning in order to be able to get out of bed, I hold down a full time job but do get extremely tired and have to go to bed very early, although I quite often wake in the night in pain.

I think my advise to any-one would be to adjust your life accordingly, rest when you need it and make the most of every day you have a good day. I eat as healthy as I can - avoiding as much acidy food as possible. I walk every day - I recommend a small dog - makes you go out at least once a day.

My job involves a lot of sitting at a computer so I try and walk around the surgery I work in every 30mins -

I love the sun but avoid it as soon as I feel it warm on my face - the Vitamins from the sun are good but not good for sjorgren sufferers.

please ask me any questions if I can help any-one else with symptoms etc as I think a lot of it is finding ways to live a very full and happy life and not let this condition rule your life.

leigh

Leigh: I would like to know why the vitamins the sun produces are not good for people with Sjogrens? I take Vitamin D, should I not?

And the pain you are speaking of, is that joint pain? I am new to all of this so have many questions. Thanks~

Hello everyone, I havent been on for a few days. This sjogrens goes along with arthritis, both kinds, but usually rhumatoid (cant spell that word even with spell check). I have osteoarthritis and yet my hands mimic my mothers, except my hands look worse, and Im 20 years younger. I feel for anyone of you who are having severe symptoms. It seems that arthritis is the base for many diseases and syndromes. Oh, I nearly forgot the question that someone asked. Sitting in the sun is not a good thing because of being photosensitive, (PT) My mom has swelled up before and that is very painful. Many meds. that she takes also makes her PT. I hate to leave this forum but I have to just stick to reading today. My fingers are so sensitive today and I feel like I have the worse flu in the world with no energy to type. I am having trouble keeping my train of thought, that scares me so much...Until later, Cathy

in my post about vitamins - I meant vitamins are good but the sun is not so good for sufferers

Vitamins can help and so can the plugs, have have eye plugs that my eye doctor placed in, and you can also do eye drops, blink eye drops and muro eye drops can help and they are both dye free drops so look for those, many well wishes and hope your doing better soon.