What medications?

In your other post you said you are using coconut oil as a mouthwash -- coconut oil is KNOW to cause burning! It is an irritant!

I would suggest Biotene products to calm and moisturize your mouth, lay off the coconut oil and see if the burning doesn't dissipate.

Treatments for Sjogren's mimic those for Lupus - Plaquneil - slows disease progression, Prednisone - deals with active inflammation, either Imuran, Cellcept or MTX to treat the disease.

Best wishes

Actually the burning came before the coconut oil.
I think you must be thinking of a different oil.
The virgin coconut oil is very soothing. It is thick like soft lard.
I don’t think a professor from a dental university would do such a study with an irritant.
Dr Laing has been given grants to do several studies re Sjogren’s Syndrome, ei sjogren’s Syndrome and dental implants. She is also on the Board of Directors for Sjogren’s Canada.
Biotene did nothing but empty my wallet.
The prednisone would be confusing for you, sorry, I have Addison’s Disease. I must take a replacement dose of 5mg in the morning and 2.5mg evening because my adrenals don’t work.
So when I say I up my pred to 12.5 mg, I actually only am taking 5mg for the inflammation.
But you are right, prednisone s not a nice drug. But it has saved my life several times. When the Lupus attacked my platelets in 2016 I was on 80mg then a taper to the 7.5mg replacement three times! It took 8 months. They were trying to avoid chemo....well every time I’d taper back the platelets would drop to nothing.....need up doing the chemo anyway. Platelets are still good.
So as much as I hate pred....it has kept me alive many times.
Thanks for the advice re other meds. I’ll talk with my rheumy. Tuffymason

No, I am talking about coconut oil. It seems soothing at application, but later, after you think it's gone, the long-term result is burning. It is used to burn off skin cancers!!!

There are a number of medications called "steroid sparing" that are used for treatment instead of just using prednisone to address the inflammation. Most of these work by addressing the illness rather than the symptoms. (Prednisone just addresses symptoms.)

These include Imuran, Cellcept, and MTX -- then if none of these work for you, they might try Benylsta or IVIG.

There is more to life than Prednisone and diabetes. (I think you need a new Doctor!)

Thanks again, I too think it’s well time we tried something else.
I did try plaquenil but had trouble with feeling “flat, or disconnected”, I just didn’t like the feeling at all.
I also tried MTX and it worked well for me but it continually raised my liver enzymes so I was told I had to come off it. I have been told of fatty liver disease and PBC because of steroid use so I guess that might have something to do with it.
I also tried IVIG but had a life threatening reaction, tpnobody really wanted to talk to me at length why but I suspect it was due to my IgA deficiency. There was a black box warning on the one used, which stated clearly about reactions with IgA deficiency.
Regardless nobody wanted to try a different IVIG suspension/brand as the reaction was life threatening.
I had never tried any of the chemo meds, but did do Ritixamab for the ITP (low platelets) and had no trouble with it and it worked very well so maybe I would be okay with them. Ritixamab so far is not available for Lupus, I was given it off label, paid for by the company as kind of a a study patient. It was very expensive otherwise. But it is used and covered for for rheumatoid arthritis.
I think my rheumy is very, very good, but I think she struggles with so much going on in one body, and with my difficulty with drugs.
We are going to have to though. Things have been getting worse over the last two years.
It’s the sjogren’s for sure, when the dryness gets very bad I know I am in for it.
I often feel on fire, then cold, head pain, dizziness, cognitive issues and speech problems, terrible digestive problems as a motility problem I have gets much worse. It is very hard to eat. Insomnia and night sweats, and then today while I was doing pretty good putting away my laundry something hit me like a ton of bricks and I HAD to go to bed. That was about 11:30 am and I slept like I was in a coma for the entire day....just crazy and no idea why.
So it has become neurological in my opinion. Health care here is difficult as hospitals and clinics are at critical with regard to wait times. Specialist appointments are not much better.
My hubby waited two years to see a neurologist....!
Thanks for your help, tuffymason