Introduce myself

RAwontgoaway

Regular Member

Joined : Oct 2013

Posts : 23

Posted 10/11/2013 5:10 AM (GMT -5)

Hello fellow sjoggies!

I have been bouncing around the chronic pain forum for the past week or so but Sjögren's is my first "love" so I thought I thought I should come say hello.

I was diagnosed with Sjögren's when I was 24 and then added fibromyalgia, lupus, seizures, and rheumatoid arthritis.

I am sure I will tell you my whole story at some point but I'll just say hello for now......hello

Butterflake

Veteran Member

Joined : Jun 2006

Posts : 1650

Posted 10/11/2013 9:48 AM (GMT -5)

Welcome to our forum Lolokonok! It looks like you have all the autoimmune diseases covered

I hope your meds are helping and that you're at least feeling okay. The Sjogren's forum isn't very busy, but there's always someone here to listen even if you just want to rant/vent. I hope to hear from you soon! Love, Butterflake

finallyadiagnosis

Regular Member

Joined : May 2013

Posts : 31

Posted 10/17/2013 8:12 AM (GMT -5)

Welcome lolokonoki - sorry to hear you have so many autoimmune issues but glad you have found some support.

Sending positive thoughts and prayers your way.

Durdle Girl

New Member

Joined : Jun 2011

Posts : 1

Posted 2/9/2014 11:10 AM (GMT -5)

I joined this forum awhile back for fibromyalgia. I knew that something else was going on and finally found a good rheumatologist who knows what he's doing. I now have Sjogren's Syndrome to add to my list. I hope I'll be able to help others and be helped. Good Luck Everyone

Fibromyalgia, Sjogren's, Stroke, Neuropathy, Spinal Stenosis, ACDF Surgery, Arthritis, Neurological disorders

Butterflake

Veteran Member

Joined : Jun 2006

Posts : 1650

Posted 2/11/2014 6:09 PM (GMT -5)

Hi RAwontgoaway. I've been sick with pneumonia for a couple of weeks. I'm still sick, but trying to figure out your screen name. Did I get it completely wrong? My brain has been very uncooperative lately so I wouldn't be surprised.

I do want to welcome Durdle Girl and thank her for the definition.

Love, Butterflake

Chartreux

Veteran Member

Joined : Aug 2006

Posts : 9664

Posted 2/17/2014 11:19 AM (GMT -5)

For me the Sjogren's was last one added...Asthma first, then the others, fibro, RA and sjogren's...I also have enlarged pituatary gland, early (under 50) macular degeneration, moderate spinal canal stenosis both cervical and lower lumbar and other stuff...but the Sjogren's is by far the worse...The dryness is so very difficult to deal with...make sure to let your dentist know about the sjogren's so you can keep your mouth health good...

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