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Chronic Fatigue Syndrome
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Posted 4/4/2007 9:42 AM (GMT -5)
Hi,

i been reading through everything on the forum trying to find a place where i fit in.

I'm a 22 year old female suffering.....

My GP is convinced i have CFS, my immunologist keeps brushing me off onto other specialist, i am now waiting to see a Neurologist.

I have been suffering increasingly for about 2 1\2 - 3 years.

I have daily headaches, with quite often turn into migraine, i have god awful Fatigue, nausea, body aches and pain, muscle weakness, dizzy spells, faintness, can sleep for days.................. and depression as a result of this.

I feel that although everyone around me supports me as much as they can, and say they understand what i am going through, i feel that no one does.

I did have a good friend who i lent on in times like this, i spoke to her almost every day, she always had a way of turning my bad days around, She had Cardiomyopathy, and unfortunately had a heart attack passed away unexpectedly late last year. I haven't spoken to anyone since, and just feel so alone at the moment.

I just feel like a complete idiot for writing all this, i know there are people worse off then me, but at the moment, i just don't know how i'm going to cope.

I can't even write a simple diary entry without bursting into tears and getting hysterical, angry, upset, sometimes i don't even know the words for how i feel.

My hands are shaking as i'm trying to type this.

And just as quickly as the tears start, i now feel like an idiot for typing all this, and feel like i'm attention seeking.

I'm just so confused, frustrated, does anyone else feel like this? Or should i be checking myself into some sort of Mental Hospital?
Posted 4/4/2007 10:34 AM (GMT -5)
Hi Tarja. I am sorry you are having to deal with this and glad you found our forum. Talking to others who do understand can make a big difference. Although I know it is really frustrating trying to figure out what is going on with your body, I am glad to hear you are seeing lots of different people and searching for an answer. I know it feels like your immunologist is brushing you off onto other specialists, but it could be he/she is really trying to get to the bottom of things. I hope this is the case.

Meanwhile, I know for me it has been very helpful to see a counselor to deal with all the mental and emotional aspects of dealing with all the changes in my life. A freind of mine referred me, and although I have always been one to sort of pooh-pooh the whole therapy thing, or think it's important for some people (ie not me!) I now know that it has been a blessing. I saw some other people too, who just wanted to drug me up, but I knew that was not what was needed. My therapist has a similar philosophical outlook as I, and with her I know I can unload without feeling I am placing a burden on another. She has also helped me to begin to quiet my inner critic, who is even less understanding and compassionate towards me than anyone on the outside could be.

I hope you continue to post on the forum, to ask questions and share what you have learned. Let us know what comes of your neurology appt.
Posted 4/10/2007 4:58 AM (GMT -5)
I'm not sure if this helps at all, but I'm a 24 yr. male and
I am going through the same thing. Your not alone.
My life has dramatically changed in the last 4 years.
Your not and idiot for saying how you feel. Especially
since we all know what your going through. Stay strong
things will get better. Have you ever tried Homeopathy?
Do some research on it. It helped me a bit. You never know
it might help you. It might not. But everything is worth trying.
Take care
Posted 4/10/2007 11:29 PM (GMT -5)
Thanks so much guys, i had to see a psychologist the other day and she has diagnosed me with depression!

So at least i have one diagnosis now, she wants me to see my gp and talk about anti depressants.

Thanks Johnnyboy, i will have a look into that, at this point, i'm willing to try pretty much anything!
Posted 4/20/2007 3:28 AM (GMT -5)
Tarja, don't ever feel badly about asking for help. That is the only way that you can get the help you need. Even talking on an internet forum can help you feel like there are people like you who understand what you're going through.

It may be true that the people around you don't really understand how you feel. When you're experiencing depression and extreme fatigue, people unfortunately tend to assume that you have the same garden-variety sadness and tiredness they themselves have expereinced from time to time. They probably have no idea how severe it can get and how much you're suffering.

I hope things get better for you and that the psychologist will be a help to you.
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