Pain management

I have been dealing with tons of terrible pain, but all these doctors I go to don't want me to take anything except Tylenol. Which I just have to say is absolutely ridiculous, because Tylenol isn't going to help someone in chronic pain. But they said no NSAIDS, because of possible rebound headaches and the problems they can cause to the digestive system. They also said no narcotics, because they think I will become addicted, although I don't take pain meds often enough for that to happen. But anyways, the point is I have nothing to control my pain, no pain meds to help. I was wondering if anyone knew of natural remedies for pain? Or any other pain meds that have worked that aren't NSAIDs or narcotics?

Well all of the stuff listed in my signature, plus I was diagnosed with Lyme disease in march, and have had acute pancreatitis 5 times since January. I also have 2 ulcers in my esophagus. So my doctors don't want me taking anything because they feel like the NSAIDs will cause more problems with the ulcers and stomach problems, and my daily headaches and migraine headaches. And they don't want me to get addicted to narcotics, though it is the only meds that work, even though I only take them when absolutely necessary. Now, I don't completely agree with them, and I have vicodin at home, but I'm 17, so it's up to my mom to listen to my mom or not, and she is for the most part. So since she is, I'm looking for info on ways to help my pain. The one medication that worked for me so far is Stadol.

Oh my, I'm sorry. I didn't realize. This topic just applied to all, and I have all the conditions I posted to. Didn't intend to spam!

No worries(:

I have a Dr. Who I consider a primary, who diagnosed the Lyme and is treating it. I see a neurologist for my headaches, migraines and epilepsy. I see a urologist for interstitial cystitis. I see a psychiatrist and counselor for all psychological issues. No doctor is really treating me for CFS or fibro, because they say they can't do anything for me, except biofeedback. But, a rheumatologist diagnosed me with fibro when he ruled out lupus. And I see GI occasionally, but usually inpatient because that's where I end up. I see other doctors now and then. I haven't been to a headache clinic. I have toradol, but that's an NSAID. I also have Sumatriptan. It doesn't work 80% of the time. I used to take compazine, but then I had a dystonic reaction.

For my ulcers, they are having me take caraphate for 3 weeks. It's a liquid med that coats the throat and heals it.

I've actually had doctors rx narcotics to me. The first couple times I was inpatient for pancreatitis, they sent me home on oxycodone. And my LLMD has given me Vic Odin that I actually have now. As have others. It's just the doctors who have recently taken care of me inpatient, said they don't want me taking it. Yes, I know stadol can be addictive. But it's honestly one of the only meds that has ever worked, and I don't use pain medication unless it's dire.

Hi And,welcome to HW.

What my suggestion to you would be for your Mom to get into a good Teaching hospital for an accurate diagnosis. Im looking at everything your saying and seeing nothing in the way of a diagnosis that can be proved or disproved.

All im reading is a long list of overlapping symptoms that a good too many Drs are trying to put a name to.

For example, diagnosing Fibro is months to years of ruling out everything else,your 17 alot of people with fibro took that long to rule everything else out and get a dx.

Cfs,same thing. Epilepsy, migraines and even esophageal ulcers and IBS are all pretty positive symptoms of Lymes.

Hormone imbalances which can cause migraines and anxiety are also known symptoms of tick borne diseases.

I can tie all the others in if need be but I think everyone can see where im headed with this.

Most Drs wont prescribed narcotics for Fibro and CFS for a long time after diagnosis since it's going to be a chronic condition and the longer those meds can be put off the better and 2 they really are not the best choice of meds for the kind of pain associated with Fibro or Lymes and as far as I know CDs doesn't cause pain.

You have psychological problems and this increases your potential for being pre-disposed to addiction issues.

As for the overall consensus of treating chronic pain by the Drs they're going to get hung up all your diagnosis causing your pain being of the kind that pretty much have no tests or film or medical proof of existence other then years of pain and symptoms and again your only 17.

Not to say there isn't young people even children with chronic pain but generally they suffer from genetic hereditary diseases or accidents that left lifetime injuries.

As for the Toradol its one of the least in the nsaid category and much healthier for someone with pancreatic problems then tylenol.

Stadol has more accidental overdoses associated with it then any other opiate in its class and most of those are by medical professionals and the rest are by the inaccuracies of the nasal spray for migraines.

I encourage you to talk to your Mom. Ask her to try to get you in to a University hospital clinic and make sure all your records from all those Drs go with you. Im positive with the right team working with you they will find that one distinct disease is happening to create all the symptoms your having which in turn accounts for the overlapping diagnosis you're getting.

No ones tying them all in and when they do you can get the treatment you need and go on to live as a 17 yr old should be not having to even know the meaning of dystonia.

Good luck and I really hope everything turns out well for you.