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Posted 7/21/2013 3:59 AM (GMT -5)

Hi again well My Rheumatoid Flare is Continuing and I've had the Burst of Steroids and felt a Little bit Better yesterday Not Greatly tho and now on the Down I had 4 days of 50mg Prednisone now today 30mg and will continue over next few weeks dropping a little every other day till I get back to 10mg BUT EVERYTHING HURTS and I feel like crying all the time and if I don't want to cry im angry and snappy

its been a while since ive had more than 15mg of Prednisone I usually take 5-10mg Day so not too sure if this is due to that or the flare, My Shoulders hurt so much I cant brush my hair or actually even pick up the brush My Feet Burn and Hands are Shinny Swollen and alternate between that or being Blue, sitting here typing this my shoulder is Killing me aching along the tendon and up into my neck

Posted 7/21/2013 5:00 AM (GMT -5)
I am so so sorry for what you are experiencing now...please remember this too shall pass.

That is not meant to minimize your pain in any way, but to remind you that it is a flair.....meaning it will go down. Please consider a dehumidifier if you don't have one and a very cool home. Perhaps some Biofreeze will help the stiffness (I've been using it like lotion for over a week). It helps with the pain some here and my meds aren't quite getting it!

I understand the hands too....mine simply won't move but a few fingers this am, but I hope they will improve later during the day. Right now NO MEDS are getting it, but I hope they will soon!

I hope you will find relief soon!
Posted 7/21/2013 5:23 AM (GMT -5)
BadDay I was sure sorry to read this. I was hoping the increase in prednisone would really help even though some of us warned you it may not.

At this point getting you out of pain needs to be a priority. Monday get on the phone and talk to the Drs office and tell them like your telling us,don't make lite of how painful it is and be brutally honest about it.

In the meantime do you have access to a heated pool,friend, YMCA, even campground and motels sometimes will allow you to use there's. Just sitting around doing some light movement in a heated pool will work wonders. This is something many of us use in our daily life to help.

Good luck and I hope this flare for you ends very soon.
Posted 7/21/2013 8:11 AM (GMT -5)
Bad day
Have you tried helichrysum oil blends? My mother in law with fibromyalgia and rheumatoid uses it to reduce her pain and my grandmother in law uses it for her surgery scar tissues and her rheumatoid arthritis. My mother uses it for her cracked vertebra and her arthritis, I use it for my spinal pain, muscle aches, and my shoulder (don't know what's wrong but it flares up and hurts bad at random times) look up my email on my user info page and I will send you my recipes on how to make it. I blend them myself and sell for cost but I have no problem giving you the recipe. I have a couple different blend recipes to suit ones personal scent preference. If it helps it helps if it doesn't it was worth a shot for some pain relief (not selling recipe to clarify its free info). I have only had one person who bought it have an adverse reaction and that was because she was allergic to almost everything out there. Even if I don't hear from you I hope you get to feeling better pain flare ups are never any fun at all

Lots of love
Morgan
Posted 7/21/2013 9:12 AM (GMT -5)
BadDay,

I'm sorry you are in a flare! I hope this prednisone taper starts kicking in and helping you. The others gave you some great suggestions to try.... so I mostly just wanted to say that I sure hope you feel better.

Keep venting when you need to...!

Take care,
Tina
Posted 7/21/2013 11:42 AM (GMT -5)
BadDay
So sorry about the flare. A week ago I finally came out of an awful about-3-week one.. miserable!!!!
Saw others gave you great advice.. 90° pool works wonders for me.. taking break thru meds helped too.. I try not to take it but sometimes I just have to do.

Rest & feel better soon..
Posted 7/21/2013 11:51 AM (GMT -5)
So very sorry to hear of this, what a terrible and painful situation to be in. Hope it eases for you soon.

My best to you,

David
Posted 7/22/2013 3:42 AM (GMT -5)
Hi All Thanks So much for your support

Morgan I have sent you off a quick email sorry it was short but I was about to go for a appointment when I saw it and thought id reply before I left

Today has been much the same and feeling very wiped out

and it is bad timing as I have a new puppy so every time I go to lay down he needs to go out -self inflicted my hubby says nono

but he is a good reason to get up in the morning

I managed to get a few things done today in a blur of pain and general overall tiredness and by 3pm was laying on bed - that's it done for the day.

I think I am worrying a bit about lowering the prednisone as I know even after the first day on lower dose is hurting and its more the fatigue its amazing how heavy my own arm is when I try to lift it or walk legs are full of lead

its odd but over the years Pain is actually sort of tolerable I try to get on with things around it but when its Everything all at once that's when I become a whinging basket case - see like now just this bit of typing and that tendon in my shoulder is Aching and burning

Sorry this was meant to be a Thank You  Post Not another Whine  

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