Been a while.....and I'm sorry for the temper meltdown...

So it's been a while since I was posting in here. Hope 2014 is a good year to all of us chronic pain warriors.

Well. My life in short has become a little less stressful and more complicated.
Pm dr moved back to Colorado. So I go see her 1 time every 3 months. Which has been working out well. It's just a little complicated due to the drive etc.

In other news, I was trying to come off my fentanyl patch (25mcg) as it wasn't working for me anymore, and I want to be medication free (apart from preventatives etc) within the year. Or at least by 2015!! Lol.

We tried Opana 10mg x 2 a day. Dear god I never want to experience that again. I was puking bile and was in so much pain in right side by ribcage and around to my back. Was horrible, and that was only after ONE PILL!!!!!. So now back to patches and up to 50mcg until February.

Quick question: do you guys have issues with ER Drs judging you for the medications you take for your chronic pain issues? How do you deal with it?

{Sorry if this post is all over the place. My mind is just frazzled. Lost a few friends to this year as they asked me to give them some pills to snort... No way. Not going to happen. No more friendship.

I also have given up my relationship with my birth mother. She told me that she didn't want to know me. That I was a mistake. She had my older sister at 15. Then me at 17. Gave me up for adoption which I'm so thankful for. I love my family!!! Then had 4 more children that she kept. She told them that I was punishing her for giving me up!? I never said or did anything about that. I said I would have done the same thing. 17 and not being able to provide for my child. I would rather give that child a world that could provide her/him with love, good experiences and most of all. A better life than I could provide!! But nope. She lied and said I was punishing her... Sorry guys. I'm now crying. darnit. It's taken me an hour to type this out. :( ..........}

I was sent to ER for gynae issues. As bleeding heavily for 2 and a half months and with my heart condition, it was an epic fail for me. So I kept eating dirt.

The Dr treated me as if I was an addict!!! My Ob sent me in because of bleeding + pain + heart issue causing me to pass out... And I get told I'm an addict?!! ***.

I barely take my b/t med as I'm terrified of my body getting too dependent and have been trying alternative things to control my pain. Such as swimming (not when bleeding), yoga etc.

Sorry for my mini rant. I'm just fed up of being in constant pain and listening to ER Drs treating me like crap.

I asked for zofran and he acted like I had asked for heroin or something like that. Was absolutely horrible.

I always thought that we were the patients. We asked for help. We pay them to help us. Not judge us. Or give me a lecture or even tell me I'm a darn addict. If I had a choice I would LOVE to not be on any pain meds and to be able to bungee jump or go soaring etc.

I miss playing hockey, I miss running track.. I miss being me. :(.

Hi Perfect, sounds like you have had a rough go of things for awhile. Hopefully the new year will bring you some better things.

ER is a place most of us CPers avoid because we are viewed as drug seekers and not patients. Even though you were instructed ti go to ER it does nor matter. That is just the drs & nurses mentality, sad but true. It is disgusting to be viewed this way as I am sure they have seen more than their fair share of druggies but we should not be put in that category.

As for the birth mother situation, so sorry to read about how she is reacting & treating you. She did you a huge favor by not keeping you if she was not capable of caring for you the next 18 years. So glad that you ended up with a wonderful family and remember that is your family. Try not to let the birth mother get you down, it sounds like she is feeling a lot of guilt if you ask me. She does not know how to handle the guilt so her best defense is to make it look like its your fault. She still has a lot of growing up to do obviously. Please do not waste precious time & energy trying to figure out her problems, its just not worth your energy. You need that energy to get yourself well.

As for friends you said you lost, well they were not really your friends or they would not have asked you for your meds. They were not thinking of you when they asked for your meds. You are better off without that kind of people. You need people around you that understands the medication is for you & your health problems not for their fun. Get yourself a lockbox/safe so no one can steal your meds too. This happens a lot more than you probably realize, people visiting & stealing people's meds.

Good to see you back, take care.........Susie

I hate to add to consensus here, but,....yes, I believe it is true.

For many of us CP'ers, going to the ER is such a last ditch effort, even if we're instructed to, because of how we've been treated in the past. It's as if they go on auto-pilot whenever a patient comes in who is in pain or being treated for CP. Their minds go on lock-down.

It's sad, it's unfortunate, but in my experience,...yes, it's common. It's unfair, and I even find it unethical. But it seems more commonplace.

I agree that asking for any drug by name is an automatic flag, and we shouldn't have to "dumb ourselves down" for the sake of the doctors or nurses, especially if we're already very familiar with our bodies and our situation.




M.