I'm just tired...so tired...

Had a great week at the beach. Little guy had an awesome time with my best friend's family and her kids. Our boys are 6 weeks apart.

And now-in the hospital. AGAIN!

I'm just so tired if all of this.

Goodness you just can't get a break these days. You have gone through so much but you always remain upbeat and positive. I admire your courage and such dedication to your little man. I really hope that you can get some relief soon and feel better. So glad that you had a little bit of time to have some fun but you need to stay out of hospital or start charging them for your wonderful presence there.

Hopefully this stay will be a short one, hang in there....

Sorry to hear you're in the hospital again. Will pray that it's a very short stay. At least you managed to get to the beach with your son.

Take care of yourself and I hope that the Doctors can get you feeling better so that you can go back home really.

I know you tired of all this stuff, you've been dealing with it for a very long time. Try to rest and focus on the good and try to push away all the negative stuff. You'll be home before you know it, hang in there. Lots of prayers coming your way.


Hugs,
Barbara

Oh no I'm sorry and it always seems for every good stretch we get we pay a very high price for. I'm sure your little guys so glad you got the time away though and hoping they'll have you up and out before too long.

Sending good vibes your way, and a speedy recovery.

Hi Rocckyd, I am sorry to hear your back in the hospital! First off let me chime in with what Merrida just said ("You know, for all that you've gone through (and dare I say, continue to go through), you do manage to maintain an indomitable spirit. You have a Gift....") I totally agree with this! And since she said so well I just had to copy it here!

You know low iron can cause allot of the symptoms that you mentioned, I am including a web site that explains the important roll of iron in your system.  http://www.hematology.org/Patients/Anemia/Iron-Deficiency.aspx  Your need for increased oxygen is easily understood, as well as lack of enery and being tired!  I will continue to keep you in my prayers!

White Beard

Just got back from my pain management appointment. My reg dr. was out sick so I saw his PA. Luckily all the drs at the practice know me since I'm their only jaw replacement patient:)

For now the Fentanyl will stay at 75mg. I'm currently receiving nutrition thru TPN so any med that goes through the stomach is not going to be effective. I also received a number of trigger point injection which will hopefully help. Drs offered to increase pill dosages, but the stomach problem makes it pointless.

Positive: Not in the hospital :) Tomorrow will be a week- Whoop Whoop!!!! One week down-gotta look for the good-it's always there somewhere.

Family will be in town tomorrow. It's my birthday, and since it was questionable that I would see it, everyone wants a party. I told my mom I'm good for about 3hrs but then I have to lay down. Saturday is an important day for my little guy. He's been doing travel soccer since he was 8 and made a U11 team. Now's he 10 and playing U12. He is a soccer crazy kid. I got an email last week from the head coaches of the Olympic Development Team (ODT). They scout out kids at games and tourneys. He's to young to try out for the ODT, but they have an academy. So proud of him! They recruit a fairly large number for the academies, and then create pools of players for different games. ODT tryouts are next year. Again, since he's young, it'll be a pretty large group of boys. He just can't believe that some coach found him and decided that he was "good enough" to be a part of this extra select team. Lots of soccer-he'll have travel practice Tues and Thurs with games starting in Sept. The select academy practices on Fridays since club teams of off that day.

Like I've said before, I can't physically keep up with him. Thank goodness he loves sports and is good at them. I can't even tell you the feeling I get when he looks over and gives me a big smile. Best medicine in the world. I'm blessed to have friends/moms who drive to the away games.

If you are able to cross fingers(which I can't) there are a few things to wish/pray for...
1)For Nathan to have fun on Saturday,and have good male role models. He hero worships his coaches.
2)For the visit/birthday fun will not tire me out.
3)For the Drs to find SOME medicine to slow down the progression. I'm just so scared...
4)If palliative care is the answer, fine, I'm ok with that. Just say so. If this is as good as it will get, fine. Just don't talk around the elephant in the room.

Little guy is at my parents house so I can get rest. Again-I'm so lucky to have support.