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Posted 4/20/2015 11:02 AM (GMT -5)
Here it is Monday already not sure where the weekend went. We had another round of bad storms to hit north central Texas. I have another day of clean up from trees. What a mess & I don't even have a single tree in my yard!!!!

Hope everyone had a decent weekend & are facing a good week ahead.

We have some members that still need our prayers, along with their family members that are facing some serious health issues. Please don't forget them.

Take care everyone.
Posted 4/20/2015 11:42 AM (GMT -5)
Hey Susie and all my cyber sibs...

Sorry to hear of the storms.  My brother lives in Houston.  He said Texas is getting the storms and sending them East to us. (gee, thanks)  We are SO VERY grateful that no tornadoes (yet) have decimated our state of MS.  We've had flash floods and pouring rains with high winds last night.

Susie, I know what you mean about clean up of limbs and such.  I'm such so very thankful that this round can be done by young boys.  Damage was so severe 3 years ago (and AGAIN in 2013), it required MEN with MACHINES. The wrath of storms is a frightening thing that lets us know we are not in control. 

It doesn't seem possible that Katrina was almost 10 years ago.  It took down 22 massive pine trees on our property, with 3 barely missing our house.  The wind did get our roof (partially).  Goodness gracious, we had friends on the Gulf Coast that lost everything, including their horses. We all know that countless lives were lost throughout the entire region.

sad  That went DARK...sorry.

Yes, we have many HW family members suffering in various ways.  My heart goes out to every one of you, whether you are in physical pain or heartsick, sad and lonely.  I'm concerned about several who were regularly active members posting.  Has anyone heard from Daesin?    BTL?    Sister Pam?   Markh?  If y'all pass through, PLEASE let us know how you're doing, okay?  That's off the top of my head, because I've been MIA throughout my Fentanyl patch trial.  I just don't see their posts, so I'm concerned.

We have several new HW family members---YAY!  There are conversations of flower beds, fountains, birds, tadpoles and bobcats...Oh, my!  It's good for the soul to share the things that might lift another's spirit. I love the stories of kids and grandkids...life blood.  I'm Southern to the bone, so I like to visit and talk with folks who are like-minded.  It's good to imagine us all finding ways to make our daily life less painful.  I'm still looking for a better life through chemistry, though I'd rather discuss ROCKS, for the little success I've had.

Y'all have a good week...Endure the rainy days, but enjoy the sunshine amongst the clouds of CP.  We only have FORWARD.

~Dixie

 

Post Edited (Dixie6) : 4/20/2015 1:54:49 PM (GMT-6)

Posted 4/20/2015 12:31 PM (GMT -5)
Got a call from the woman that does the fittings for the tens units. She's going to see if she has one for me or if she needs to order one. Either way, I should have it soon!

I've been supporting the right arm more, actively and at rest. It seems to be helping.

Had a rough morning. Overwhelmed from missing my parents. I've been an adult orphan for 21 years since the age of 34. Gave in to it, went back to bed and wept. Then got up and got busy cleaning in the kitchen. Not all done but a good start.
Posted 4/20/2015 1:23 PM (GMT -5)
Birder Nancy has her surgery Thursday-Posterior C3 - T2 laminectomy and fusion. Prayers appreciated.

The storms Susie mentioned resulted in our power being off for 7 hours Saturday night. Some were without power much longer. The clean up is in full swing now.

Adult orphans, yes, that brings a sadness to me, too. I've been there just about as long as you pitmom. Still hurts sometimes. Looking in the mirror and seeing my mother's face look back at me brings the tears frequently.

Hope we all have a decent week, some sunshine is in the forecast!
Posted 4/20/2015 1:54 PM (GMT -5)
Hello from Alabama,

We finally have some sun and it's a beautiful day.

Jodi
Posted 4/20/2015 2:32 PM (GMT -5)
Praying for Nancy.
I'm still hanging in there. Nerves in my arm acting up again. Hope I get into new guy soon.
I am wishing happy and pain free days for everyone.
Posted 4/20/2015 2:32 PM (GMT -5)
5.38am. been up all night. oh well. it is tuesday here. healing prayers to all. cold. tired, sore.
Posted 4/20/2015 3:02 PM (GMT -5)
Having a horribly rough month. A year ago I lost my ex husband, we remained friends. My kids are struggling. Crazy how emotions can make us hurt more physically. Any good documentaries you've watched tidalmouse? Have a pain free week

Lynn
Posted 4/20/2015 7:53 PM (GMT -5)
Don't think I've mentioned this before... I wanted to live in the country and my wife wanted to live in town, but she lived in the country for me all 20+ years of our marriage. Now there's no reason for her to stay in the country after I die, so I encouraged her to buy a house in town and I'd help her move as much as I could and be glad to live there however long I live.

So we're in the middle of moving, only about 30 miles away but in a medium-sized town near a bigger city--perfect for her. I'm surprised how well I'm doing. Other than the pain of shingles (or PHN actually), which still continues the same, I don't even feel like I have cancer, thanks to the Xalkori. Unfortunately, it can cause fatigue and so can the neurontin for my shingles, so I don't have my normal energy, but I told my wife I'd plant her favorite roses to remember me by, and I carried edging bricks and two bags of topsoil from the car around to the front of the house. Lots of trips, but still, that's like huge--couldn't have done it last fall. This evening we're back at the old house and I need to get back to packing boxes.

The bad news is that I've been on the Xalkori five months now and it works on average about 8-10 months, so I never know when I'll start getting worse again. They have other targeted drugs to switch to after Xalkori, but no guarantee I'll tolerate any well enough, and eventually you run out of options and die. I'll say, for chemotherapy, these targeted drugs are great. The Xalkori has given me almost no side effects--a little tiredness, though that might even be the neurontin, and some minor visual weirdness when going from a very dark to very light room. If I could only get rid of this stupid shingles pain!
Posted 4/20/2015 10:12 PM (GMT -5)
Pitmom--sometimes ya just grieve, yaknow? I never really knew my mother, she died when I was very young. My father passed away when I was 20. I grieve, in varying degrees, especially as Mother's/Father's Day edges closer. So, you're not alone.

Prayers for Birder Nancy, Aned, Leila and her family....for lots of folks in this community that have struggles today.

And James, odd as it may sound, I celebrate that you get to do these things with your wife, for her -- and for you. I'm grateful for the medications that allow you to be treated and still participate in the life you have in front of you, today. That's amazing. I also appreciate and am honoured that you're so open, so willing to share your journey with all of us here. Thank you.

And as for documentaries--notsomuch my deal! LOL. BUT I'm going into 'brain overload' watching the "Cosmos" series with Neil DeGrasse Tyson. And it's good for my ego....LOL....helps me stay "small", know what I mean?

Right....so I'm checking in with nothing but work on the agenda until next weekend when I go watch the 5 year old run after a ball up and down a soccer field with a bunch of other 5 year olds in the general direction of a goal. LOL. Unless something distracts them like.....ohhhh.....just about everything! *laughing*

Have a joy-filled week everyone! smilewinkgrin

Post Edited (melagain) : 4/20/2015 9:21:09 PM (GMT-6)

Posted 4/20/2015 10:50 PM (GMT -5)
Dixie, my mom lived in an area impacted by Katrina. The destruction was massive. I was pregnant with my daughter when Katrina went through and I live in AR. It was terrifying not being able to reach my mom for a while. I've been back over the years and while it was a slow recovery it was a very amazing one. The community really came together and it was wonderful seeing so many people helping each other.

My pain management dr added in a muscle relaxer over the weekend so I made no big plans for today. We had big storms last night and my cats are still being kind of weird. I've got 4 cats, all spoiled. Tomorrow I see my new PCP and my daughter sees her cardiologist. I have the nerves cauterized on the left side of my back Thursday.
Posted 4/21/2015 12:09 AM (GMT -5)
Hi All! I'm tired of the rain! It seems where I live we are breaking the all time record for rain fall for the month of April and we still have ten days left in the month! The past couple of weeks I have been trying to put in a couple of raised garden plots in my back yard, but the weather and my body just don't seem to want to cooperate! Still having lots of problems with my right leg so it makes doing tasks like this allot more difficult and challenging!

JameBW I Applaud You! and I also Thank-You! for sharing your journey with us! I hope that you will continue to do so! I like to look at life here and now as one's journey, and when this one is over, then we start on another one, what ever that might be!

I wish You and your wife all the best and Peace be with both of you!

White Beard
Posted 4/21/2015 7:12 AM (GMT -5)
i try and read all the threads, i do so slowly. i appreciate the paragraphs as i am vision impaired. i respond with healing thoughts as i am aware of struggles those have and those needing support. just know that i am thinking of you all. long posts are hard for me, so when i can i try and tack on. in new south wales (sydney) have been hit with terrential rain and flooding. homes floating away and some drownings from floods. keep well everyone.
Posted 4/21/2015 8:06 AM (GMT -5)
Threw the ball just a bit too enthusiastically yesterday, shoulder is hurting bad today. Still, have to take the dogs out for their exersize today. Hoping my mood improves today. Hoping things improve for all of us!
Posted 4/21/2015 6:41 PM (GMT -5)
I'm in Texas as well and the Thunderstorms took out power, we went out for a little while and got it back on fairly quick, daughter came for a 2 day visit and we got 4 kitties to a low costs vet vaccination service. I see my RA doctor on Thursday and will ask about bloodwork before proceeding any further with RA meds...I'm so very tired, frazzled and worn out that I can't think straight, could use some prayers..hurting everywhere and I see my attorney tomorrow, Thank you Susie for all the help I sent a reply...I forgot something, sorry...really appreciate your help.
Many well wishes and blessings to all...
Posted 4/22/2015 9:32 AM (GMT -5)
I've been putting off checking in in hopes of feeling better. I think there's something going on in my ear besides "just" Meniere's. Waking up every morning with nausea and feeling of sinus infection, drainage, headache, unable to hear, screaming tinnitus, eye irritation, tearing up ..... I'll call the ENT to see if more testing can be done.

I have the grandkids today, so despite nausea, we'll go after school to look for frog and toad eggs. Toads - strings, frogs - masses. Feed tadpoles boiled lettuce, the soft green parts. Let tap water sit overnight for chlorine to get out. One year I found some on April 1, took them to my son's K class for an April fool's joke, passed them out to kids in plastic bags to take home with lettuce & directions. One mom was disgusted, several delighted.

Kids are better than medicines. Nausea is better just writing the last paragraph.
Posted 4/22/2015 10:54 AM (GMT -5)
 

  tongue Thanks, ALCIE!!!  I needed that visual.  I can just picture the activities you describe with your grands!  I LOVED the snow/tractor scene...Those visuals lift my spirits.  I truly thank you for that, more than you know.  The tadpole/frog stories are such fun, too!  We have bajillions of tadpoles each summer in our 300 gallon garden pond.  The frogs love to nestle into all of the surrounding rocks.  We rarely "see" the frogs, but WOW- - -they serenade us at night.  I did not know that you can feed tadpoles.  Maybe that's why they come to the top and "look" at me.  I should try the lettuce!

Kids of wonder are medicine for the SOUL.  Enjoy them, even though I know you feel like poop.  I wonder if maybe your sinus infection has moved into the ethnoid sinuses.  My husband's GP, then ENT did not treat his infection aggressively.  In 2006, he had the vertigo and vomiting due to the sinuses.  It took months to get someone to investigate.  The infection HAD moved into the ethnoid (deep) sinus cavity.  They told him he had Menieres, but we never bought into that.  We felt the fluid/vertigo was due to non-draining fluid in sinuses/ears.  He was hospitalized for several days receiving Solumedrol (sic) and antibiotics through IV. He went from "dead man walking" to great within a week. Note:  Solumedrol (sic) spiked his blood sugar and pre-existing HBP temporarily.

Life, as you know, is a trade off.  The benefit of the IV steroid outweighed the risk of temporary spikes.  Of course I MUST say that I am no doctor, just a student of life with a PhD (Pain has Debilitated).  Each must consider their own circumstances and consult their doctor.  I just wanted to give some thoughts for you to explore.

My husband now recognizes the onset of sinus infection (EVERY SPRING).  He realizes it won't just "get better".  He immediately sees the NP for injections of Rocephin and oral antibiotics.  He's had 2 severe bouts already this Spring, but nipped them in the bud, suffering only a few days vs. weeks of misery.

I hope you can get some relief from just some of your issues, so that you can enjoy those GRANDS.  I wish I were there!  I'm so very sick and lonely...with no hope in sight.

Have FUN!!! turn

Hugs~Dixie

 

Posted 4/22/2015 12:01 PM (GMT -5)
Alcie, that's great! My sister and I would catch tadpoles when we were kids. It was neat to watch them develop into frogs. My nickname as a kid was Froggy because of my love of them. If there was one nearby, I would find it. My kids like to watch them grow, too.

I have a sick kid home today and not the one I expected. My daughter was feeling better this morning. My son only made it an hour of school so he's home. He's been reading his new Guineas World Records book. Hopefully, he will be up for school tomorrow because I have to get back injections.
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