TMJ please read this

     Tmj is having a tuff time of it, and does most of the time. We both have talked to Annuk, looking for a solution to her problem. Yes, you are correct she is from England, so there is somewhat of a time difference. I will see to it that Suzane reads this as soon as she feels better. Thanks for posting this for her!   It means a great deal to Suzane to know that someone is looking out for her.

   I see many a member with pain issues, and can recieve some relief with meds. However; this poor woman has tried everything, and nothing has worked so far, and I do mean everything!    

  SE

Post Edited (Screaming Eagle) : 12/1/2010 11:08:59 AM (GMT-7)

I think part of the problem is that they cannot pinpoint what is causing her headaches and or where the pain is coming from. Hard to treat when that is not known. She did however tell me that she was possibly going to try methadone, and I took it that she had tried it before, but didn't know she had some success with it. Her thought process, is that she wants the problem fixed and not masked with meds. The last med she tried was Ketamine, and did not help her. (a very powerful med)

The headaches have affected her memory quite a bit, and I'm always prepared to repeat myself to her. My wife and I love her dearly, and just hate to see her suffer so much. Lets hope Annuk receives some relief with this implant. She has suffered quite a bit as well. Again, she will appreciate you're efforts to suggest something for her. We keep looking and hoping!

Not to change the subject, but I'm interested in the pain pump that you have been talking to retiredmom about. My Dr mentioned this to me the last time I was in to see him, but I do believe I have so many other options to seek out first. However; I do like to start my research early, just in case. So when ever you post something on this, I do perk up!

I have not heard from Suzane in a few days, and that is not good, nor is it normal for her. She should be checking in here soon, and if not, I will call her husband and visit with him.

SE :)

Thanks Michael for giving me the heads up of this post for me. And thank you Straydog for your concern.
Yes this is one tough journey I am on. It's been ten years since these headaches started and three years
with no relief. I have tried it all. They want me to hold off on the Methadone but I don't know how much
longer I can last. No one can find the answer and yet they all find it very strange that I have not responded
to any form of treatment or medication. I believe we are still missing something in my body. I will be seeing a \
naturopath on Dec 16 who will look at things such as gut testing for food allergies, heavy metal toxicity, acidity in
my body etc. Also checking for hypothyroid for other problems besides the pain. And taking big doses of vit D
for a week.

Once again thanks Straydog for thinking of me. And always a thank you to my special buddy Michael. What would I
do without him.

Suzane have you ever tried Methadone before? I know of several people on a low dose that Methadone was the only thing that helped with their headaches. I am so sorry no one has any answers for you, I know you have suffered enormously.

Take care.

Thank you Antbuggey and Damouthy for your concern. I sure appreciate all the lovin'!!

Hi Straydog. Yes in 2002 I tried Methadone and it did help me so that is why I have mentioned it to my pain dr.
as I am going crazy with this head pain. It is wearing me down pretty thin and I don't know how to
keep being strong and getting thru the day. So it may have to happen sooner than later. I am trying to hold off as
we are checking other avenues for this pain.

Thank you so much for responding as it means the world to me.

Hugs