More weird pain stuff~RANT

Sorry to hear of your troubles..

Who is supposed to be giving you are referral to a Rhematologist? I would just find a GP in Washington NOW...and call ahead and set up an appt. for the week you get into town. This way, they can immediately get a referral to a Rheumy for you.

Also...aren't you on Neurontin and Percocet and some other meds? I know for sure that Oxycodone has listed of photosensitivity in their side effects....

So it's imperative to not be out in the sun without applying and reapplying every few hours 25 spf or higher..And staying out of the sun (or wearing a large hat and long sleeve) in between 10-2.....

I know it's a mixed blessing for the test results...But it's good to celebrate when you don't have a diagnosis of RA or other serious illnesses....

But I do understand that you want to get to the bottom of this pain...

I think a Rheumy is the way to go...I would just stay on top of the new GP and they should be able to do the referral the day you are there or within a few days of your appt.

Good luck with the move!!!

Honestly, some GPs are just more knowledgeable/open minded/willing to find the problem/on top of things.

Hopefully, like the others have said, your next GP will be more accommodating and will help you find the cause of things. It doesn't seem like you have many other options because of the move, but start doing some research now and call around. It will be less stressful if you have things lined up.

Have you ever had this rash or a rash before? Could it be something you came in contact with or a food? I'd never had a rash before and then my mom bought a certain type of dryer sheet and I had a rash all over. You never know what could cause an adverse effect.

Are you on the medications that are listed in your profile signature? Oxycodone, Prozac and Neurontin all can have photosensitivity as a side effect.

Also...have you set up a GP appt. in the new state yet? If not...it really would be best to go ahead and do this now so you are set up and then can get a quick referral.

I went through a similar situation, I was very sick with flu like symptoms and in chronic pain throughout my body while trying to seek help to alleviate the pain to function and determine a cause of the illness to get better. It began over a year ago now, it took a month and a half to see a fibromyalgia specialist and finally get treatment for my pain and another three months for one of my lyme tests to read positive. If you go to the rheumy and come up with no answers. You may want to seek a specialist of fibromyalgia. Rheumatologists look for evidence of a debilitating disease through labs and imaging such as arthritis, Lyme, etc. Fibromyalgia goes undetected in those types of tests, lyme disease can go undetected too, symptoms of chronic Lyme mirror fibromyalgia, and Lyme can cause Fibromyalgia. If you should be diagnosed with Fibromyalgia it would be ideal to be rechecked for Lyme Disease to assure it is not causing symptoms of or was not the cause for Fibromyalgia.

Wishing you all the best
Erin

Thank you guys for your response, after reading everything I've read it seems to me like Fibromyalgia is the stepping stone for all the other stuff, RA, SLE, Lyme...etc. Whatever rheumy I get, I will be pushing them hard because while I do have A LOT of Fibromyalgia symptoms, my pain stems in my joints and then radiates. So whenever I take Neurontin, it improves the radiating pain but my joints are killing me. I really appreciate your response, it makes me feel less crazy!!!