Posted 11/3/2015 2:49 PM (GMT -5)
Hi All,
1978. I was born w/ Spina Bifida, but it went undetected for many years. I was not dx until age 20. Had a tethered spinal cord that had caused tons of nerve damage to bladder, bowels, and decreased sensation in lots of areas.
1998. Had surgery a few months after the dx to untether the cord. Surgery a success, (although chronic back pain starting post surgery).
Fast forward to 2015. Been having lots of problems with joint pains, problems, tons of medical issues. Just had a colostomy, total hysterectomy, and another bladder surgery this year. Have had numerous problems over the years, never blamed on SB or the tethered cord.
Yesterday. MRI of brain and spine.
Today. Report says cord is retethered (has been since soon after surgery, but was told then it was not "pulling"/causing any issues.) and IS pulling/likely causing some medical problems. Have to wait until next week to find out recommendations on tx.
Now. Broke down and cried when i got home. Mom was with me. Didn't want to tell her, but couldn't stop the tears rolling down my face and eventually told her. Feel like I got punched in the stomach. Head is sort of numb. What the hell is happening?????