Posted 3/5/2022 10:18 AM (GMT -5)
My husband suffers from a chronic headache that had a sudden onset 5 years ago.
Like so many others, he has tried every specialist, neurologist, dentist, functional medicine doctor, naturopathic, alternative treatments, protocols, gut healing treatments, immunotherapy, psychological treatment, musculoskeletal treatment, and more with absolutely no success. He tested positive for Lyme and co infections.
Treatments have either been 1) completely ineffective, 2) somewhat effective but tapered off, 3) made everything significantly worse (especially with pharmaceuticals)
The pain around his head, like a band, is always present. It’s a 6 on a good day; most days are 7-8. The symptoms are consistent with a sinus infection (chronically stuffed nose, colorful mucus, sometimes blood, pressure and tenderness across the cheekbones) but no sign of infection has been found, even with an endoscopy.
He is also highly sensitive to chemicals, dyes, environmental toxins like mold, etc. He has tested for high DAO, having master cell activation syndrome.
The pain is bad enough and has kept him from working or engaging in anything out of the house for years. But he also experienced very troubling and degenerative weakness. The “lights begin to dim,” so to speak; he will experience difficulty breathing, frailty, weakened heartbeat, low body temperature, decrease cognitive ability, decreased circulation, and more. In the past, some interventions have pulled him from that place like hyperbaric oxygen treatment or stem cells.
However, those no longer have an effect on him. He continues to weak every day and admits he feels something dying inside. His doctors are completely baffled, as blood work shows no problems.
This post is more to see if anyone else can relate. At this point, we’ve given up trying to find answers.