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Crohn's Disease
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Posted 4/4/2010 3:38 PM (GMT -5)

I have recently been diagnosed with crohns in August 09 and I am no better.  I had been diagnosed with IBS then took really ill and got took into hospital for 2 weeks, then I was diagnosed with crohns.  I was pleased in a way as I thought I was going crazy before that and it was all in my head!!  This week has been particularly bad as it was my 'time of the month' and as I suffer from Endometriosis, I have been in agony aswell as feeling very low and extremely tired.  I am currently on Predfoam which I was hoping was going to make a difference but sometimes I can't keep it in (!!) so it's never gonna work.

I am taking multivitamins, acidopholsis and digestive enzymes twice a day aswell as folic acid as I am also trying for a baby but I really don't think it's going to happen somehow if I keep feeling like this!!  My consultant said that diet doesn't matter with crohns and I have tried to keep a food diary but it didn't do any good so the only thing I change is not to eat spicy food.  Has anyone been to see a dietician??  I'm just after any advice anyone can give me please, on anything!!!

Thanks in anticipation

Posted 4/4/2010 3:46 PM (GMT -5)
Welcome to healingwell.
Unfortunately having Crohns usually makes that time of the month worse. If your med is not working and you have been it for over six months now, I would reevaluate with my GI doctor my meds.
Do you know where your crohns is in your GI tract?
There are plenty of diet threads on here, so you might want to use the search box in the upper right corner.
There are also resources in Ivy6's sig.
Posted 4/4/2010 5:35 PM (GMT -5)
Hello Ellie81,

What meds are you taking? In the beginning it does take time to find the right treatment that works for you. I have learned you need to be very proactive with this disease. Call you doctor when you have questions and, when necessary, push to get them to understand.

I hope things improve for you!
Posted 4/5/2010 3:49 AM (GMT -5)
btw, some doctors can be very unsympathetic and clueless when it comes to pain & symptoms being exacerbated at "that time of the month". If your doctor doesn't listen, please keep badgering until s/he does.

Many of us benefit from being on birth control of some form, to stop us from getting periods. For me, this gave me a lot more stability and control over my symptoms than I had before: until then, I'd been getting sicker every time I had a period, and never regaining my former level of "health".

If you click on the "diets" section in my signature below, you can find lots of good resources on the role nutritional therapies can play in Crohn's treatment.

All the best to you, and welcome,

Ivy.
Posted 4/5/2010 11:30 AM (GMT -5)
I found that birth control pills really helped to make that time of the month better. You might want to talk to your doc about that. Hugs!
Posted 4/5/2010 3:55 PM (GMT -5)

Thanks for getting back to me everyone!  I had a feeling everyone might suggest being back on birth control but as we're trying for a baby, I don't really want to do that.  I am beginning to think it's never going to happen as I'm not strong enough to go shopping some days, never mind carry a baby for 9 months however my Doctor did say that crohns is supposed to get slightly better when you're pregnant?! idea

My crohns, I believe is in the lower part of my bowel which I have been told is the worst if they have to operate as I will more than likely end up with a bag.  I'm scared to be honest with the doctors incase they suggest operating but then I don't know if I am just over thinking everything!!  The meds I am on is the Predfoam (which is an enema) which I have to do every night.  I also take a multi vitamin, digestive enzyme and acidopholisis twice a day.  I have been on steriods and pentasa sachets.  Steriods worked very well but couldn't stay on them very long.  Then went on nothing which was a nightmare, so then went on the pentasa sachets alone and that was horrible too!!

The mood swings are getting me down too, does anyone else suffer from this and can recommend anything to take to help please, something herbal??

I see a few people have mentioned a low residue diet so will have a look into that too.

Thanks again for your helpsmilewinkgrin

Posted 4/6/2010 9:03 AM (GMT -5)
Well before trying for that baby I think its best to get yourself healthy first. They say a healthy mom produces a healthy baby. I wouldn't want to be pregnant and flaring at the same time. It can't be good for Mom or baby. Good luck!
Posted 4/6/2010 10:14 AM (GMT -5)
Good Luck. A few ideas I did when I was trying to get preganat... yoga & acupuncture helped as well as the low residue diet. I did feel better when I was pregnant because you produce steriods naturally during pregnancy but after my 2nd child 3 yrs ago its been very rough and I dont think I could do it again feeling this way. The good thing is if you do get pregnant you just need to take of yourself... good luck!
Posted 4/7/2010 3:01 PM (GMT -5)
Thanks for your replies everyone. I know what you mean about getting healthy but I am beginning to think I never will!

Went to the hospital yesterday and I am now on steriods which I am going to be weaned off over 3 months as they are going to give me Azathioprine if my white blood cell count is okay. Didn't really want to do this but got no choice, I'm just hoping I don't get any of the horrible side effects and start to feel better soon.

Looking at most people I seem to have had it quite easy compared to some!!
Posted 4/7/2010 3:23 PM (GMT -5)
If your crohns is in your colon it is actually a better place to have it then in your small intestine, because not as much stuff happens in the colon (like extracting vitimens that you need to build a baby)...
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