Heya,
Been putting off posting on this s couple days, been sick, lol, like who isn't sick here.
Anyne who has read my posts over time knows of my woes with pred in relation to other drugs and my illness.
The "evil pred" that everyone and his uncle wants you off of....
I am not going to argue with the world about its side effects, but, if you have exausghted all other avenues, all other medications and treatments, if pred is the only thing keeping you going, I am not sure any self respecting human could, would or should tell you to get off, unless a new alternative which had a very good chance of fixing things came along, alla cem stell or something.
In the mean time, and I'm going through alot right now I won't elaborate on, talked about it elsewhere, I had to stop imuran cause my panreatitis is back, and now my GI put me back to 20 mg pred after getting down to 10 mg.
As usual at 10 mg, I was so sick I could no longer eat, tapering and organ failure do not go well together.
Yeah, I don't want to be on pred forever, but I seriously have to weigh my every day "pain" lifestyle versus the long term effects of meds. I can't spend the rest of my days ill as hell because pred is "evil".
I wish there were an alternative, unfortuanatley, eveyrone is different. Pred works for me, pentassa, humira, remi, imuran, enotort, narcotics, no.
Still, pred aint perfect, but every time I change meds, I end up back in the hopital, as I will be next week again :)
As well, my bp is always higher on Pred.
GL and it may be irresponsible to say, but if pred is all that works when your waiting for something else, I don't see the harm in it in tems of keeping your pain levels in check and sanity in place.
Jon