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My anniversary of sorts...

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Crohn's Disease
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Posted 10/31/2011 9:08 AM (GMT -5)
Today is the 36th anniversary of me being diagnosed with Crohns Disease.  And I am still here:)

Do you remember the date you were diagnosed?  Just curious.  Hugs!

Posted 10/31/2011 9:24 AM (GMT -5)
Well I'm not gonna say congrats, because that wouldn't sound right. But yay!!! you're still here.

I was dx in 1999, but went a long while undiagnosed...
Posted 10/31/2011 9:30 AM (GMT -5)

I don't remember an exact date, but I do remember the month and year and the whole conversation with the doctor. I was very sick, and I wondered if I had cancer..I really thought I might be dying with four children in my home..After the conversation, I think I have told this story before, but I had a professor in college I was told died from this dd..?? I am glad to be better and educated, and I am not afraid of dying maybe diarrhea in public places!!..I went throught a period of grief after that no one could really help me with..I had to accept the fact I had a disease with no cure.

Cindy

Posted 10/31/2011 10:03 AM (GMT -5)
I didn't have an exact day of diagnosis. We got positive prometheus tests, then a bleeding ulcer, then positive biopsies, etc. It seemed like a process more than an actual day. I was thinking lately about the first time I signed on to this forum and how helpful it has been over the years. I'm grateful for everyone here...I don't think I would have coped near as well without you. Nanners, thanks for inspiring and supporting so many of us for so many years, and like Vicky said, I'm glad you're still here!
Posted 10/31/2011 10:16 AM (GMT -5)
I don't remember the exact date..as I was a teenage and didn't care to remember.  But it was Feb of 1988.  I remember I was in the hospital for almost a week and prevented my mother from starting a new job.  Back then I think I was diagnosed with UC not Crohns but it was all the same.  The dr was the best and as I changed doctors I got better care and a better diagnosis.  To this date I still can't get a firm diagnosis of what I have because it keeps moving on me.  Even the promethius lab results were inconclusive. 
Posted 10/31/2011 10:44 AM (GMT -5)
I can't remember the exact date I heard my GI say I have CD, but diagnosis was a process during the winter and spring of '98. I do remember him telling me around Feb. that he saw 6-8 inches of inflamed TI.
Posted 10/31/2011 10:54 AM (GMT -5)
I "celebrated" 29 years in August, if memory serves me it was the 17th (but my memory isn't what it used to be).

Gail -- think of all you've endured and you are still here fighting! And being a comfort to others.

Let this be a lesson to all the newly dx people here -- People can and do live many years with this DD. And for alot of us we live a relatively normal life, have families, hold down a job and get on with the daily business of living. You just have to learn to roll with whatever CD throws you and hopefully come out on top.
Posted 10/31/2011 11:03 AM (GMT -5)

I celebrated 21 years of diagnosis on 8/26/2011.  And I do celebrate...I actually have a lot of good things in my life that are directly related to my cd aside from the usual disease crud.  I also have been VERY fortunate to be a lucky crohnie with most of those years in remission.

I say all this while eating fried onion rings---so I haven't learned my lesson in 21 years!

Posted 10/31/2011 12:04 PM (GMT -5)
My diagnosis came during my first hospital stay from Jan 16, 1981 until 99 days later. I was very sick from blood loss, and they never did find the source of it. Also, diagnosis was trickier back then, but I think it was mentioned within the first 2 days. My husband probably knows!!

I usually just think of Jan 1981 as my anniversary, which is easy to remember since I had just
gotten married in Nov of 1980. I had just turned 23 in December of 1980, so I have a trio of
dates to remember :)

Sudsmom
Posted 10/31/2011 12:21 PM (GMT -5)
Congrats!!

I dont remember the date but remember what my GI told me. She said, "you have crohn's disease. It is not curable but it is treatable. If you want to learn what it is, go to this website." She handed me a slip of paper with the web address to the ccfa. I should have fired her then and walked out the door.

Posted 10/31/2011 1:05 PM (GMT -5)
Congrats on still kickin' and rockin' it!
Best wishes!

11/28/2008, the day after Turkey Day! Woopiee, didn't get to enjoy all the yummy left overs boo hooo
Posted 10/31/2011 2:49 PM (GMT -5)
As many of you mentioned I went years with doctors telling me to take more xanax or advil and that all my pain was from fibromyalgia or kidney stones that no one could find with a non contrast cat scan at the ER.

The first time Crohn's was ever mentioned to me was January 2010 when my b/f insisted that I go to the ER. I was in terrible pain. They were going to let me leave again without doing anything when fortunately they took my temperature again and this time it was over 101. That's when they sent me up for a double contrast cat scan and also started me on IV fluids and morphine.. and I was finally admitted! On the third day I had another colonoscopy which showed ulcers throughout my colon and also inflammation so bad at my ileo-cecal valve that he couldn't even get a pediatric scope into it. That's when I was told I probably have Crohn's. I remember being so relieved and happy that I FINALLY had a diagnosis. They let me watch the whole procedure so I could see all the bad spots. A few weeks later I had my first small bowel series and that confirmed a long narrow stricture in my Terminal Ileum. I had had a colonoscopy and upper endoscopy just 5 months before this and that incompetent GI told me I was fine even though I described the same horrible pains to him. So be aware that there are a lot of GIs that are just awful.
NY VEGGIE
Posted 10/31/2011 3:07 PM (GMT -5)
We´re glad your here to smilewinkgrin

As many of you I can´t remember the exact date but in early spring 2005. Even though i´ve known it within ( not the exact dx but IBD) for years and years before sticking my head in the sand. At first it were UC and the GI told me to be glad it wasn´t crohn and then... well it´s no use crying over spilled milk :-)

planning to be here a long time to



:-)
Posted 10/31/2011 4:52 PM (GMT -5)
My symptoms started labor day weekend 1995. Lost 30 pounds (was 85 pounds when dx) and finally after nurses telling me to take peptobismo and test after test, was finally diagnosed in December 1995. It's been a long haul, up hill mostly but I wouldn't change it for anything. I have a great husband and a beautiful daughter......I could do with a few less trips to "unknown" bathrooms in all corners of the world though!!!!

We are all troopers!
Posted 10/31/2011 7:09 PM (GMT -5)
   I was diagnosed 10/10/08.  Every year on October 10th I do something special to celebrate my "crohnsiversary". 

   I was diagnosed after an emergency resection.  The resection put me into remission, which lasted about 6 months.  I was so lucky because after recovering from surgery I finally felt well enough to start making some really positive, healthy changes in my life.  I started carefully watching what I ate, and I started an exercising regularlly.  One year after my daignosis I celebrated by going hiking in Acadia National Park.  The next year I took up running, and I celebrated my second crohnsiversary by running at 10K race.  Then this past year, on my third crohnsiversary, I hiked Champlain Mountina in Acadia, using the Precipice Trail which is part hiking trail and part climbing adventure.

   Even though I am no longer in remission, I've been lucky enough that my symptoms are not debilitating.  I feel so blessed that I am able to do these things, so I celebrate my crohnsiversary every year to remind myself that I am in a much better place now than I was on October 10, 2008.  I hope to have healthy and happy crohnsiversaries for many years to come, but even if I get very sick again I'll at least have the memories of the adventures I had the chance to take, and did take, thanks to being diagnosed.

Erica

Posted 10/31/2011 7:32 PM (GMT -5)
Officially Diagnosed 09/01/2010. I think I wrote about it when it came about. I guess,.. Congrats! I always see that day as a bittersweet moment because at least what I was feeling finally had a name and I could be treated for it and bitter for pretty obvious reasons.
Posted 10/31/2011 9:01 PM (GMT -5)
I have 2 anniversaries, but I don't know the exact date for either. In the fall of my freshman year of high school I had my first real trouble. That was 1977 into 78. My doctor told me there was no way I could have Crohn's disease. With my family history, i was sure. Then in the summer of 1988 I was given my official diagnosis by a different doctor. But the doctor from 1977 was still my GP. He was amazed at how calmly I took the diagnosis. Well, duh, I had known for over 10 years.

But, I have still had a really great life. Congrats on still being here from one long termer to another.
Posted 10/31/2011 9:34 PM (GMT -5)
Oct. 1, 2007... I can remember the day like it was yesterday... though in some odd way I am a little grateful for having Crohns. It made me face life in a whole new way and take chances that I would have been to afraid of to do before. I wish I didn't have it but if I do, I try to look at it the best way possible.
Posted 10/31/2011 10:04 PM (GMT -5)
I am so glad you are still here! It was Feb 5, 2009. I had been extremely ill with no explanation as to why and then was dx with UC. 10 months later on Dec 30th I was dx with CD after a repeat colonoscopy because of increased symptoms.
Posted 11/1/2011 12:55 AM (GMT -5)
I cant say for sure what the date was they finally Dx me within that 6 week time frame back in 87/88 but I know I went into the hospital on Dec 23 and was there for 6 long weeks and at 1st i was so afraid Santa wouldnt be able to find me for Christmas. I had my 1st joint symptom Nov 1 1987 and docs swore I must have twisted my ankle trick or treating when there was no twisting etc and my parents were with me and also knew I didnt twist it little did we know then what it was
Posted 11/1/2011 11:40 AM (GMT -5)
February 1989 - 22.75 years ago.

I don't know the exact date, either. I know I was in the hospital for 2-3 weeks, and Valentine's Day passed while I was there. So, early February, 1989.
Posted 11/1/2011 12:42 PM (GMT -5)
I couldn't even remember the year, let alone the day! Only reason I'm certain it's 2000 and not 1999 or 2001 is because I saw the year of diagnosis in my medical records.

Much more clearly I remember how it began - in the period between Christmas Day and New Year's Eve I developed diarrhoea. Naturally enough I put it down to Christmas excess, but when after a few weeks it hadn't cleared up my mum pushed me to go to the doctor about it. Instead of one of the useless regular GPs, I saw a competent locum who took me seriously and referred me for further testing. I had a colonoscopy and a barium follow-through and a few months later a diagnosis of Crohn's was given.

I was bemused. You see, I couldn't have had milder symptoms if I'd tried - liquid/loose stools 1-2x a day, that literally was it. I didn't really believe I had Crohn's at all, despite my brother having been diagnosed with it a year or two earlier. His experience was different to mine though: for a start he had bloody stools, which sounds infinitely worse - 'bloody diarrhoea' just sounds so much more scary than 'diarrhoea'.

Long story short, whoever made the diagnosis made a good call 'cos I did really have Crohn's, as time proved :-/
Posted 11/1/2011 11:18 PM (GMT -5)
did ya party? ;0). i dont remember the exact day , of DX but my first surgery was 5th july '85. ;o)
Posted 11/2/2011 9:47 AM (GMT -5)
Two years ago today :(
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