Do your symptoms ever not match up to disease location?

I know I'm probably posting too often, but I really cope a little better when I have your support....so more whining for you! So I've been struggling along on 30mg of Pred, and I started 6MP on 1/1/12. I'm on a liquid diet and I have successfully advanced to little bits of food like scrambled egg or 1/2 piece of toast at times. It seems like about an hour or so after I try to eat anything other than liquids, I get pains up in my stomach and nausea. I'm also struggling on and off with the pressure feeling in my rectum..tenesmus. I've been messing around with Miralax doses. My stool has been primarily soft and mushy, but if I don't go, I feel bloated and in pain, and if I take too much Miralax, then I get diarrhea. So here's some stuff I'm wondering about:

1. My disease is only in my terminal and distal ileum, and my latest CT showed two strictures. So why would my stomach hurt??? Also, I have no disease at all in my colon. Do you think that pressure feeling is just from the Miralax?

2. My doc told me not to taper the Pred until I am successfully eating solid food. But I'm wondering if the Pred itself is causing the nausea and stomach aches? I don't think it's the 6MP. I've been taking it at night, and seem to do ok, unless it is a delayed reaction.

3. My trip to the ER and partial obstruction was on Dec. 18, and I've been on Prednisone ever since. Does this seem like a long time for me to still be struggling with advancing my diet? Even with the 30mg of Pred, I have not appetite, and nausea that comes and goes. I have zofran, but it makes me too tired in the day and I'm trying to keep working.

Maybe I'm not being patient enough. Any ideas will be greatly appreciated as always. I'm so tired of being sick!!!!!!!!!!!

I have a stricture that ccauses things to get stuck sometimes and when that happens it always makes me sick and my stomach hurts even though the stricture is at bottom right hand side of me right by where my hipbone area is. You could always try something like omeprazole for acid reflux as that can also make you feel queasy. I think (may be wrong) that 6mp is similar to the azathioprine that I take and these meds can take up to 3 months to work on your system properly so may take a few weeks to reduce the inflammation down, in the meantime stick with the foods that you can tolerate and see if meds for acid reflux help at all with the stomach pain. Strictures slow down your digestive tract and this can affect your appetite and the feeling of bloatedness. Do you need to take the miralax and have you tried Gas X for the bloating?

Thanks everyone,
I think you are right that it is probably the acid reflux. I am taking omeprazole. (generic Prilosec) I think the combo of barely eating, the Prednisone, the new 6MP, the new flare and inflammation is all doing a number on me. Kazbern, my husband also reminded me that although I'm very frustrated with this incredibly miserable and painfully slow process, I am ever so slowly getting a little better and adding some solids. I am shocked at how slow the process is. I'll try reducing the Miralax....I have such a fear of the pain, and I hate when I feel like things are not moving. Thanks once again for all of your support. I miss the days when all I had was some tenderness in my ileum!!!