Posted 3/25/2012 8:15 AM (GMT -5)
I'm in the middle of a severe flare up, one I haven't had since years. It started with a proctitis flare up. But since 2 days ago, I have this horrible pain in my right side. It's not cramping. I feel it's the motility of my colon. It's a burning sensation in my upper right side and the lower one. It's like the rubbing or friction of my bowels together. Also, I have severe fatigue, knee pain and nausea. Well, my D, I think is related to my proctitis. I stopped the enemas I take as I had constipation. I now have what I used to have the urge to have a bm 24/7. If I don't comply with the call, I have nausea, headache as if I'm constipated. I too have to strain and I feel that my bms are of high viscosity (sorry for the graphic). But I don't feel well at all. I need to sleep a lot. I can feel this battle between my body and something else. All this won't convince my GI to give me meds other than pentasa tablets, entocort and both pentasa enema and budesonide enema for my proctitis. Pentasa tablets are not effective any more. He believes that since the biopsy showed mild active colitis, this is nothing. I stopped having this pain when I was under pred and MTX. Now, really, I'm praying that things become worse so that my GI gets convinced that I need treatment.
Ah, he keeps telling me when the EN is confirmed, treatment will be changed. He has seen it himself but he wants a dermatologist to confirm it. EN hasn't appeared since last time he told me this. I too have this knee pain which turned out to be colon related. I feel that my condition is like a puzzle and my GI keeps putting pieces together but there is still a missing piece: ulcers. Without ulcers, he told me he won't be able to prescribe biologics. So, square 1.
Is there something I can do to put things under control before seeing my GI next week. May be I can swap meds? Any advice will be highly appreciated.
Sorry for the vent and I know that you might think I'm depressed but this disease has gotten my ends.
Thank you very much for listening.