ostomy reverse

 hi im suffer from cronh disease,i been throu a lot,my cronh is very agressive because of that i been throu 4 surgery already,now hopelly my doctor going to reverse my ostomy an i very scare, i'm really uncomfortable with my pouch because i can't put my old clothes and i always were black pants,and also i have a few accident been out on restaurant,movie,store etc.sometime i don't want to go out,i feel very bad just because i don't feel atractive to find somebody not even a friend who can understan what i have.well i hope somebody answer me so they can give me goog advise.sorry for my writing i'm spanish.than you.

 

 

Hi yanieska, I had an iliostomey for about 8 months and then had it reveresed.  I too don't understand if you are upset that you are getting reversed, or are you just afraid of the surgery.

I also would like to mention, that I had many accidents when I had my pouch, the one thing that I realized was that I did not go anywhere without a change of cloths and all the things that I needed to change my pouch.  If you carry these things with you in some nice carry tote, you can relax a bit more because you are prepared, it helped me in that way.

Hope you cheer up lots of people have accidents, so you are not alone in that regard.

One other thing you can look forward to is farting, believe it or not I really miss that function when I had my ileostomy.

Good Luck to you, and if you feel down again, just post again, and I am sure that you can find some friendly replies.

P.S.  I found that cutting down on sugar caused less accidents.

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Hi yanieska,

You should never feel embarassed, with or without a pouch. Always hold your head up high. 

As for food, you can eventually go back to your regular Crohn's diet, but after your surgery they will have you on clear fluids first, then soft foods.  By the time you go home, they will have you eating a regular diet.

The only thing that I would suggest is to keep away from any food that could cause an obstruction in your intestines.

Ask your doctor what types of foods to avoid and what things he/she would recommend.

The main thing is to always talk to your doctor when you are feeling unsure about anything.

Good Luck yanieska.

Hi I'm very scare for my surgery the 12 of this month,I always thinking how I'm going to feel,if I going to be in a lot a pain,and how long is the recovery,what food I need to eat after that,and if I have to go to the bathroom often.please somebody can explaime about the Ostomy reverse thanks yanieska

Hello Yanieska, please try not to stress yourself out so much about your surgery, it is not good for you.  Try and think of all the positive things that you will experience once your surgery is over.

One of the things that really concerned me was what it would be like the first time I had a bowel movement after the reversal (my rectum was sewn shut while I had my ileostomy).  All my worry was for nothing, it was just the same as it always was, and as for the pain, the doctor will perscribe medication to help with that.

Worrying about something that has not happened is one of the worst things that you can do. The doctor and the nurses will help you when it comes to what you can eat when you go home and will give you instructions about what you can and can't do, once home. 

It will probably take a good 6 weeks to fully recover, and return to regular activities, but like I said before, the hospital staff that are going to be taking care of you will help you with all the pertinent instructions, and your diet.

Just try thinking about the clothes that you can wear and how different it will be for you, instead of dwelling on all the negative things.

I hope some of these suggestions are helpful to you, good luck with everything. 

hey i was 21 when i had my illeostomy, i found that wearing dresses with short shorts the best/most comfortable. hides the bag and the shorts kinda keep the bag close to you so it doesnt move about so much,before my bag i was in alot of pain and after the reversal of my illeostomy, i never had much pain,thou i did eat ALOT of food and had a partial obstruction...but other than that which was my own fault i didnt have many complications.and going to the bathroom after the reversal was ok.