Severe leg pain

I would definitely get checked! I hope its not the Remicade! They should test you to make sure you don't have a clot somewhere. Please keep us posted!

I'm actually struggling a bit with C. My urine is clear, and I've been taking potassium daily for a few months. My endocrinologist left a vm this afternoon that I didn't get until after 5p saying some of my blood results were concerning and she wants to do more tests.....but she didn't specify what. I'll have to wait till Monday.

I know, tell me about it! Actually, no, my thryroid is the only thing that hasn't gone all crazy! My testosterone and progesterone and other hormones like those were low. So I'm guessing the call has something to do with that? I'm not sure what it call could mean. The depo-provera shot along with having stopped pumping in February (although I'm still leaking milk) and maybe Remicade might have something to do with it? I still haven't had a period since I got pregnant, and my baby will be a year old next month.

Scifi, i have had these pains on all three bios ive take - remi, humira and simponi. My docs have done antibodies tests, sjogrens, and rheumatoid arthritis tests and theyre negative. I think in my case its just a side effect of the meds.

This is kind of left field but do you notice your feet and legs hurting more when you have to poop but are backed up?? My left foot and leg literally throb when i cant poop. Its bizarre and im not sure why. I tend to be constipated and my left limb always reacts to it.

I also see an endo because my hormone levels are in the post menopausal range. She wants me on hormone replacemant therapy but im terrified since im so young.

Anyway, im just rambling but wanted to tell u that i can relate. I dont wanna stop my treatment plan just because my uc is so quiet but the side effects are really doing a number on my body.

No, they don't seem worse when I'm backed up. But I haven't really gotten backed up - even though I say I struggle with C, I have BM about 1-2 times per day. They're just formed so it's painful between the fistula and hemorrhoids.

Last night I literally did not sleep, my legs and right hip hurt so bad. I probably reached an 8 on the pain scale; I just wanted to cry, but I was too tired. It sounds too dumb to go to the ER about and I don't want to be treated like a drug seeker, but I've been taking norco 10-325 (2 pills) round the clock the last few days and all it does is make me itch like crazy. If anything, the pain is getting worse. Now it hurts just sitting on the couch.

When I had my big flare, everything hurt. I couldn't sit up in bed, couldn't swing my legs around and physically couldn't stand up from sitting. I remember that specifically well.

I was in the hospital for that flare and blocked out a lot of the pain, but my Dad remembers when nurses came in and just touched my legs, I would seriously react. One specific time I remember having to leave my bed to go to some sort of test. Sitting there with my legs over the side I just could not stand up. I couldn't believe it. I was 20 years old.

As I desperately was trying to stand, the tears were running down my face. I literally couldn't do it. Here I am, just out of my teens and I can't stand for a sitting position? F u Crohn's.

I was on 125 mcg Fentanyl patch and was getting 8 mg Dilaudid IV every 4 hours. When I couldn't stand the nurse came over and gave me 4 mg Dilaudid. It was a miracle. Immediately after I could stand without pain.

Besides the pain meds, I was given 40 mg prednisone to get out of the flare. It worked wonderfully besides the horrible side effects. So I guess what I'm saying is, could it be a Crohn's flare and could prednisone help?

Thanks everyone. I ended up going to the ER last night; I knew I just couldn't handle another night. The IV dilaudid helped. The doctors were so awesome. I was afraid they were going to treat me like a drug seeker ("hi, my legs hurt!") but they didn't. They are really confused, though, and did a ton of lab work that all came back normal. So they said to just call my rheumatologist. I've been off prednisone for over a month and was only on it for about 2-3 months. I usually get severe leg pain while on it, and not while tapering at the low doses. And never my whole legs, just usually my shins.

I'm not flaring right now. In the colonoscopy last month with the FMT, it showed very minimal inflammation and I haven't had any symptoms to make me think that that's changed.

So we'll see what the rheumy says. I'm hoping it's related to the hormones being funky (although I'll find out tomorrow what those are).