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Crohn's Disease
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Posted 8/28/2014 6:33 PM (GMT -5)
I enjoyed my 10 months of remission...a short one. Now, I was at the doc's today and he put me on 6MP. I am so sad after reading that I wouldn't be able to have a child while on it. I am only 27 and have no child and I don't know if that is a good thing or a bad thing when you have a disease like this. Sometimes I wish I had had a child earlier on but now I think of all the hospitals stays that may be in my future and how I wouldn't be able to care for my child...I don't know I am just feeling the world is being so unfair to me these past 3 years. And now I keep thinking of how this is not my to my husband either because who knows when/if I will be able to have a child.
Could someone give me a work of encouragement, please? Thanks :(
*And I can't even talk to my mom about it because my mom is in another country and she would be sick to death if she knew my symptoms are back again and this is just so depressing and I'm inconsolable and I don't want even want to bother my husband with this because I can't talk, I just cry...

Post Edited (Gezinha) : 8/28/2014 5:39:22 PM (GMT-6)

Posted 8/28/2014 6:52 PM (GMT -5)
I don't know what country you are in but there are many women who take biologics and have very healthy pregnancies and babies. Can you lt your doc know about your desire to have a baby and ask about the possibility of switching to a biologic instead? Don't lose hope....you still have options!!
Posted 8/28/2014 7:04 PM (GMT -5)
I am in the U.S. my om lives in Brazil. We talked about remicade if it happens that 6mp doesn't work and i know that pregnancies with remicade are possible. I just read that there is a very high rate of fetus mortality and that would crush my soul if that ever happened to my husband and I.
Posted 8/28/2014 8:16 PM (GMT -5)
I don't know who told you that you can't have a child while on 6mp, but that is NOT true! Lots of women have gotten pregnant while on 6mp and stayed on the medication throughout their pregnancies and had healthy babies. In fact, research shows that women who take 6mp during pregnancy have the same percentage of birth defects or problems as the GENERAL POPULATION! That means there is NO increase of problems or birth defects, etc.

I was taking 6mp when I got pregnant with my 2nd child. I took it for the first 2 months of the pregnancy. I stopped taking it because I was in remission, but my doctor recommended for me to stay on it. I'm taking Imuran right now which is like 6mp and I'm trying to get pregnant. My doctor is fine with this.

Also...I have taken remicade during all 3 of my pregnancies and even breastfed while taking it. All of my kids are healthy, intelligent, and happy. They had no problems as babies and have no health problems now.

I don't know where you read that there is a high rate of fetus mortality, but that is simply just not true. You are 27. I didn't have my first until I was 31 and I had 3 (and I'm trying for #4). I think you have EVERY reason to be hopeful that you can have a family. Of course you should be stable and in remission because if you are flaring that can be a risk for miscarriage, but please don't let the meds deter you. Of course no meds is the most ideal when pregnant, but for some of us that's just not possible.

Cheer up! And if your doctor isn't supportive, find one who is. Plenty of women have had successful pregnancies on these meds, there's no reason that you can't too!

Stef
Posted 8/29/2014 3:27 PM (GMT -5)
Thank you Steph and Gumby, that lifted up my spirits. I read the mortality rate thing on Wikipedia, it says on my instructions for the medicine and my doctor did talk about the pregnancy a year ago when we were talking about options for medicines. I am so glad that there are people out there who are living life as normally as possible and there is a possibility that i could be one of them too.
Thanks guys and have a super great long weekend.
Posted 8/31/2014 10:42 PM (GMT -5)
I'm on Simponi and 6MP and currently trying to conceive. All my docs know and I'm high risk but it's possible for sure.
Posted 9/1/2014 6:38 PM (GMT -5)
Also, there are many other meds to try other than 6MP. My GI didn't want me on it when trying to conceive, so I switched to Humira, and actually found it much more effective. I hated 6MP and never felt it worked very well.
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