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Azathioprine making me feel like poop!!

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Crohn's Disease
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Posted 9/26/2014 8:36 AM (GMT -5)
Hi all I'm new to both this forum and to chrons. Have only recently been diagnosed but wasn't too much of a suprise as I already suspected it. It's in my small bowel and I also suffer with flare ups in my throat and mouth. I've tried entocort and pentasa both which I reacted badly to and had to stop. I'm now trying azathioprine which is making me feel horrendous, I started it 3 days ago on 1ml =10mg in liquid form. My throat has been burning I've had chills my glands are swollen and my chest feels tight. I'm unsure wether to continue trying to persevere with this med until my blood test next week or stop it now. I feel better today than yesterday but still no energy whatsoever and still in a great amount of pain with my throat and chest.
Any help or advice would be great.
Many thanks :))
Posted 9/26/2014 9:39 AM (GMT -5)
Call your doc right away. People can get bad side effects or pancreatitis from aza. Don't stop on your own, but see what your GI thinks. Welcome to HW btw.
Posted 9/26/2014 2:53 PM (GMT -5)
Thanks so much for your reply. I rang my GP and she said to stop it and call the specialist nurse at the hospital Monday. I'm quite worried though as my consultant said were quickly running out of options at my last appointment. I feel better this evening so unsure wether I'm slowly getting over the side effects but don't know if I dare try to persevere and take my next dose which is due now?? On top of all this my monthy cycle has come on now too :( Just great lol!
Posted 9/26/2014 4:17 PM (GMT -5)
I'm not a doctor...just a Crohnnie, but I think if they told you to stop, then you should until your GI can take blood work and make sure that you are not reacting to it. I had to stop 6MP (similar to the azathioprine) because I quickly developed elevated liver enzymes and had to discontinue it. Pancreatitis is also a risk. Your GI may have you try it again if your lab work looks ok but wait and let the doc decide. There are side effects like nausea that get better with time, and then there are dangerous side effects. And you are not out of options....there are more meds left to try including the biologics, methotrexate, LDN, etc. I know it's very frustrating, but try to hang in there until you can talk with your doc on Monday. Also, I'm in menopause now, but my periods always made my GI symptoms worse...that's fairly common!
Posted 9/26/2014 7:47 PM (GMT -5)
I would definitely stop if that's what your GP recommended. 6MP totally did a number on my liver. I ended up in the hospital.for 3 weeks because I was so sick. Hope your Crohns responses to different treatment. :)
Posted 9/26/2014 8:01 PM (GMT -5)
I foolishly decided to give it one last shot and took my evening dose I was bringing up bile so I stupidly thought maybe I needed a dose. Now my chest is tighter than ever. It's 2am here in the uk and so my only option is to either call out of hours emergency dept at the hospital or try wait it out til morning. But lying down is making it quite hard to breathe. I feel very stupid. No more aza for me. Thanks for all of yours advice though it's greatly appreciated.
Posted 9/26/2014 8:07 PM (GMT -5)
If your having trouble breathing you need to go to the ER ASAP!!!!!
Posted 9/27/2014 10:15 AM (GMT -5)
Hi New2014x,
I hope you went to the hospital last night. Let us know how you are doing!!
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