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Remicade infusion preponed

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Crohn's Disease
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Posted 3/1/2016 7:54 PM (GMT -5)
Have been suffering lately from severe pain in my lower right quadrant. I upped the dose of Entocort to 4.5 mg before seeing my GI. Saw my GI yesterday because the pain was unbearable. He asked me when my next Remicade infusion is due and then decided to prepone it. I'm not going to be taking the 3rd loading dose in week 6 but in week 5. He also asked me to taper entocort off to 3mg again. I read that a lot of you don't take the remi infusion after 8 weeks but sometimes after 6 or 7 weeks. Are pain and body's response the criteria or what? All my tests came back negative as usual and honestly I don't know how w a fistula and inflammation. Quite weird!
Posted 3/1/2016 9:16 PM (GMT -5)
Remicade can react differently for everyone, not unlike every other drug. Some respond incredibly rapidly to Remicade, feeling better within minutes of the first dose. Others it can take a couple of infusions.

The ones that have changed the schedule and resort to every 6 weeks instead of 8, are usually long term users, that are experiencing symptoms as a result of effectiveness issues.

I think you might just stay with 8 weeks and look at other potential factors. Perhaps try a low residue diet for a week or so, and see how you feel.

Hopefully you're feeling better soon, and the Remicade starts to work well for you.
Posted 3/2/2016 3:43 AM (GMT -5)
73monte, thank you. This has been very informative. I do keep a low residue diet. Let's hope it's only the last loading dose that has to be changed and then I can keep up w the 8 week schedule.
Take care :)
Posted 3/2/2016 4:43 PM (GMT -5)
We've talked about moving it to every 6 weeks, but that was LONG after my loading doses. I think you still need to give it a lot more time to see how it's going to be for you. I don't think it's had a chance to kick in yet fully for you to know either way.
Posted 3/2/2016 5:14 PM (GMT -5)
Minnie, hopefully the earlier loading dose will help the Remicade kick in quicker! I have a quick question for you. How do you get the 4.5 mg entocort? I can only get them in 3mg capsules.
Posted 3/2/2016 6:02 PM (GMT -5)
Rose*flo . Thank you. Entocort only comes in a 3mg concentration. I take one day 2 capsules which equals 6 mg and on the other day one capsule 3 mg. If you add 6+3=9รท2=4.5 mg.
Take care :)
Posted 3/2/2016 7:32 PM (GMT -5)
Gotcha, thanks! :-)
Posted 3/3/2016 3:25 AM (GMT -5)
You're welcome :)
Posted 3/3/2016 7:38 AM (GMT -5)
minnietoty,
I noticed a difference at about the third infussion, actually great. for me i just knew when it was wearing off, loser more frequency and energy level. I went 8-7-6. All I can say is I just knew but had to stop due to reactions. I'd stay at wider spacing abit longer. But that's me. Let you intuition be your guide.
T
Posted 3/3/2016 1:21 PM (GMT -5)
Question Everything, thank you. I know what you're talking about. This happened to me when I took entocort several years ago. I noticed the improvement then before my GI did. This time I haven't felt any improvement yet. I'm flaring up, my proctitis is acting up in a crazy way and all my GI wants me to do is just to be patient. Hopefully, this time the infusion would be a turning point.
Take care :)
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