Prometheus Lab tests

I was diagnosed with Crohn's in 2006 based on a colonoscopy (and biopsies). A colonoscopy (and biopsies) this September showed no signs of disease activity, so my GI ordered a Prometheus test. The results of the test showed patterns consistent with UC.

This really says nothing about the accuracy of the Prometheus test, however, as I still have no idea which (if any) diagnosis I have received is correct.

Colonoscopy came back . inflammation all down the right side of my colon, biopsies negative for crohns,,,but prometheus test positive for crohns, now doc is gonna do a camera pill test.

I'm the opposite. My blood tests were off the chart positive for crohns. My colonoscopy showed mild inflamation and nothing in the biopsies. I was diagnosed by symptoms and blood test. My blood test showed "severe" crohns, symptoms were moderate, colonoscopy showed mild if anything.

I don't. I have my records somewhere. I just moved and wouldn't even know where to look. I know it gave the number and then to the right gave a percent. Mine was 320% on the field about crohns. I'm also lactose intollerant too which I hear can make your numbers higher.

Try another serology solution, IBDX, manufactured by Glycominds, uses 4 markers, including a form of ASCA, that are glycan-based markers. Ask your doctor to order this serology test. It can be run at Labcorp or ARUP laboratories. It is a much better serology solution.

You should ask for it. Some docs are reticent to use serology, but the tide is changing with top down therapies and markers that can assist in determining recurrent severe symptoms (prognostic testing). The nice part about the IBDX solution is that it is fully covered/reimbursable, using simple cpt codes. I wish you luck and don't let them prod, poke and cut you if you get answers using much less invasive means.

Wow, at least they put you on some strong meds. I've had a year of misery and all they put me on was colazal and some rectal meds that I hate. So, now they want more tests after my serology was positive.

Sorry it didn't solve any problems for you. Yes, you are right, it is upsetting when when you are out so much money and still no answers. My medical bills this year were outrageous and I don't have a lot of answers yet either. Did you keep trying to get your insurance to pay for the tests and appeal the decision? Sometimes it is just too much of a hassle, so you just pay. I didn't even have that much done and my medical bills this year were almost 10k and that is my out of pocket cost. It was so much that I am almost at the point where my insurance picks up 100%. I might actually reach it with this next CT Scan, but it is too late in the year to help. Next year, we are changing to another insurance where our out of pocket won't be so much.