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getting off TPN

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Crohn's Disease
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Posted 2/2/2010 1:34 PM (GMT -5)
I've been on TPN for a month--3 days lipids, 4 days electrolytes. 12 hour infusions done overnight at home. It basically saved my life! Was in tough shape. GI says it's time to stop the TPN which is great news. However, he said there really isn't a need to wean, that I can just get the picc line removed and stop the infusions. My infusion nurse said it's supposed to be some sort of weaning that takes a while. Ideas? experiences?
Posted 2/2/2010 2:39 PM (GMT -5)
No, I was on TPN for nearly 3 months. My liver enzymes got toooo high so they took the line out. 43cm!
I didnt wean at all. It was fine.

you have to Wean GOING ON, because of Sugar spikes etc..

But if you are able to eat right after tpn, your body will adjust just fine.
From my experience.
Posted 2/2/2010 3:03 PM (GMT -5)
I was on TPN in the hospital for a few weeks, nothing like you. But they just pulled the line and stopped it cold turkey.
Posted 2/2/2010 3:07 PM (GMT -5)
I reintroduced food very, very slowly: ice chips and barley sugar first, then clear liquids, then low res, and built up from there. It took a while, if I remember rightly, and I think I started on the barley sugar etc while I was still hooked to TPN.
Posted 2/2/2010 3:49 PM (GMT -5)
My daughter was on TPN at the hospital for a month. They stopped it cold turkey and the first thing they brought her to eat was a hospital hamburger on a bun. I thought that was a little strange but she kept it down and never had a problem.
Posted 2/2/2010 8:49 PM (GMT -5)
this is helpful--thank you! I've been increasing my food intake daily (lots of small snacks) and am anxious to see if I can maintain the nutrition and weight without the TPN. Not sure if I've been on a "big dose" of the "stuff" or not. Hope I can survive without it--but I'd do it again in an instant. Again, I think it saved my life.

Will let you all know what the pharmacist says and how it goes. Thank you.
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