Wowza.

So, I just got back from my appointment with my GI after a very hard night of Crohn's attacks.

I was sitting in the waiting room and a rep from Prometheus Labs comes in (you know, the people who do the genetic testing for Crohn's and Celiac disease). So this lady is talking to my doctor and she's like, "I came in to talk to you about that one case. That girl has double gene mutations for Crohn's disease. Do you realize how rare that is? Do you know what that means?" I couldn't hear his reply because he was taking her back to his office, but I thought to myself, "There's no way they're talking about me."

Come to find out they were. I can't believe this. When he was talking to me in the office he was like, "Ah, so you're the one...you have the gene markers for extremely aggressive, severe Crohn's disease."

At this point, I don't even know what to think. A little part of me is angry at all of those doctors that told me it was all in my head and that my case was so mild that it couldn't possibly be progressing that fast (without looking at my small intestine). Another part of me is extremely scared. I now feel more justified and less guilty about using pain medication.

I'm starting Cimzia probably next week (everything is going through insurance and all that jazz). He thinks it's a really good idea with how everything has been lately and how screwed up my genes are.

I think you should look at it as a positive from the treatment aspect. You have just become a VERY interesting case for all involved, and that means more attention! The doctors will be wanting to spend time looking at all your test results and listening to how you are feeling, how you are reacting to treatments. I know it sucks to feel like crap and to have been treated like you were not really sick, but as of today, you are being taken seriously and going to be treated like you should have been all along.