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Generic Entocort question

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Posted 9/6/2011 6:09 PM (GMT -5)
Hello everyone,

I plan on mentioning this to my GI when I see him the 14th however it just came to me this morning.  I started generic entocort 22 days ago after being on name brand since the middle of Sept 2010.  i have been on 9mg for that long.  My Gi does plan on tapering me off of it since it can lose its efficacy after being on it for a while.  Now I figured about 1-2 weeks ago it was when I started being really uncomfortable.  I think partially it was triggered by ordering a sandwhich at a new place in town (silly me knows better than to get meatballs that I am unsure of ..havent seen recipe for or tried a small bite of someone elses to ensure it wont bother me).  My husband seems to recall it bothering me even before that but it got worse since. 

Has anyone on the generic entocort found for you it didnt work as well as the name brand?  I know with some people the fillers in some meds will bother them.  I do have food allergies as well as oral allergy syndrome and lately I have been getting hives from even carrying grocery bags in the house (a little off topic I know but just some additional info about my situation).  I have never had issues before with generics not working just as well as name brand although my husband is one my father another where with certain meds it is a MUST that they have name brand for the meds to do their job.

Thanks for your input

Posted 9/6/2011 7:16 PM (GMT -5)
I responded to your same question on fb, but I have to take the brand name of Prilosec as the generics don't work for me on this med. I usually have no issues with generics, but with the generic Prilosec I do.
Posted 9/6/2011 11:14 PM (GMT -5)
Yes I got your post on FB as well ty was also wondering if others found the same. I had my labs draw today and I counted back that I began the generic on the 15th of Aug. Trying now to recall when my symptoms started getting a little out of hand. This week my hair started falling out again which it does when I flare and when I start some new meds. So much so that the tub wont drain unless every couple of days I take some tweezers or hemostats to it to pull out the hair. Also I had an overnight accident which I havent had one in a while esp one where I didnt wake up while in progress or shortly thereafter
Posted 9/7/2011 2:57 AM (GMT -5)
So far I am fine, although I started the ento back at a reduced dosage, just to help me through some stressful times....I could feel things changing inside due to the stress.  That was one of the reasons I asked to go back on was the generic.  So far it's been good.  Although I guess I should clarify that it may be different as I am trying to stay in remission since I finally got there, whereas if you are still fighting to get there that me be a possible difference.
Posted 9/7/2011 8:22 AM (GMT -5)
I have trouble with fillers. Not so much with prescription medications but with OTC. I can't take any CVS brand generic, something they use as a filler gives me hives. There is a margin of error, if you will, with all generics. The FDA allows generics to be "off" + or - to a certain degree on their main drug component, so if you are super sensitive, or the drug is just barely working for you, then the margin of error will affect you. Or it could be the fillers. Then again, it could be a flare. So many factors come into play. But if you are hurting this much from changing to a generic, I hope your doctor has a plan to put you on something else when you start to taper.
Posted 9/7/2011 8:26 AM (GMT -5)
I was looking on fb and you were complaining of kidney stone pain around the 18th of August. So that falls into the time frame you started the Entocort.
Posted 9/7/2011 10:36 AM (GMT -5)
Dragonfly, you mentioned you are taking generic entocort? Are you in the USA? I was not aware there was a generic for this. Did it just come out? I have been taking Entocort with each flare up and my insurance requires me to take generic unless there is no generic. My pharmacy tells me there is no generic form out there yet. Do you have the name for the generic that i could question this? Thanks
Posted 9/7/2011 11:31 AM (GMT -5)
Nanners,

last night I was looking back at my FB posts as well. I have an accident overnight and woke on the 18th with a mess. This happened to be 3 days and therefore 3 doses of the generic. I wonder now if it was in fact KS pain or not I never felt one pass nor did I go through many of the other symptoms I had when I passed one before. I mean never know it may have been may all be related to what is happening now.

Jano yes generic came out in the USA a couple of months ago. When i refilled my script last month they gave me the generic instead since it was avail. No other generics have ever caused me issue, and I know I am suppsoed to tell my pharmacy things like I am lactose intol etc but the busanide (sp?) only has lactose in the asthma inhaler not the CD med. I am just trying to make heads or tails of all of this and the pieces just seem to be falling in the puzzle for me.
Posted 9/8/2011 9:28 AM (GMT -5)
Entocort is a a drug and delivery system combination. It is possible that the drug is the same or very similar but the delivery system is not working for you. The entocort folks and my doc claim that entocort is the best for delivering the meds to the small bowel. As I have small bowel issues, entocort is the drug for me.
I might try the generic if I need to, but as I have small bowel issues, I would go to canada for the good stuff if the generic was causing me any issues.

I would not pay the rip off prices of entocort in the US. I think I paid about $180 per month (3 x 3 per day) from canada
Dave
Posted 9/8/2011 12:14 PM (GMT -5)
I have both small intestine and large intestine involvment hense pentasa humira and entocort combo. The skin tags recently have been itchy in that area hemmies bleeding again little fissures also coming (but quick to repair on their own not like the time I needed that special ointment). Just in a way cant wait until Wed when I see my GI I am about to throw the towl in on food altogether and just get some ensure...although not sure if it is lactose free and I have vomited that up before too (no blockages or anything at the time it was to supplement food etc to try and help me gain weight)
Posted 9/8/2011 2:37 PM (GMT -5)
Hello, I'm new to this site. So far, this entire forum has been very helpful in that it is beneficial to know what others are experiencing. I've had Crohn's for about 5 years and currently, taking Entocort 6 mgs. per day down from 9 mgs. per day. I'm in remission. Recently, diagnosed with colitis, too. No meds for that because the symptoms left. Fibromyalgia is also an unwanted friend of mine. Now, I control that without drugs and have had fibro since 1984. I gave up on the anti-inflammatory drugs after a few years of intense stomach pain.

My GI wants to put me on Remicade or Humira. I'm terrified (getting better) and seeking a second opinion.

I've had a huge bout of joint pain, lately, that is finally subsiding. I didn't know others had experienced the same. This was my first intense experience with that pain. I'm going to try modifying my diet and please keep the information flowing. I appreciate this site.

 

Posted 9/10/2011 4:44 PM (GMT -5)
4 weeks on 9mg Entocort ... bowel shutting down so doctor just put me on 40mg prednisone.  Here comes the moon face ...
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