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What do you do when depression starts crawling?

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Crohn's Disease
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Posted 1/31/2014 9:41 AM (GMT -5)
Not finding hope in anything. Pain is persistent. The 5mg pred is literally doing nothing and Entocort 3mg is useless. Trying to get an endorsement to travel abroad for a second opinion but it doesn't seem to be that easy. Keep pretending to be in good shape so that not to hurt my mum and sisters. Wish i had been a doctor. Can't convince anybody that it is only Entocort that controls my symptoms and not pred but in vain.
After 7 years of pain, I can't take it anymore. Fifteen years w GERD have never been debilitating. It was really devastating for me that my GI told me twice last time that he is not 100% sure I have Crohn's but still he would like to try Humira.
I got fed up w reading medical articles; btw, it's not my specialty. I need an answer.
I saw a lot of psychiatrists but they did nothing. Prescribing tranquilizers is not the solution. All I need is a conclusive diagnosis and meds that work. I feel I'm asking for too much; as if I'm doomed to live w such severe pain and d for good.
Sorry for venting but can't find anyone else who could relate.
Posted 1/31/2014 10:25 AM (GMT -5)
Hi Minnietoty,
I'm sorry this is all so hard for you! For me, I give myself permission to grieve my healthy self for awhile, and when I'm ready, I pick myself back up and try to fight my way back to health. If is very hard to do in your situation, where you have been sick for a very long time. If your doc is willing to try Humira and you can't go abroad for a second opinion, then I think you should go for it. Even people who have confirmed Crohn's will sometimes try biologics and they don't work. I think your illness status outweighs any risk of the biologics. I have not tried SCD, because I seem to manage my symptoms without needing it, but if I were in your shoes, I would do everything I could think of, and for now it seems like doing SCD along with the Humira makes the most sense. I agree with you that you can't manage the depression completely until you have a treatment plan that works for you.
Posted 1/31/2014 10:45 AM (GMT -5)
Gumby, thank you very much for your quick response. I really appreciate it. When I read about SCD, it seemed illogical for me. My worst enemies that trigger pain and D are veggies and fruit. Fats induce instant D. If i avoid them, things go on smoothly that's why my food is very very restricted. I failed to convince any doc that this is the problem and that he has to deal w it.
Posted 1/31/2014 11:07 AM (GMT -5)
I know exactly how you feel. Honestly when my crohns recently hit it's peak I was so depressed I wondered if I could continue. It just seemed to get worse and worse. Please read my recent post because what I wrote there changed my life and I now view crohns totally differently. It is time we grab the bull (crohns) by the horns instead of holding on by the tail.
Posted 1/31/2014 11:32 AM (GMT -5)
Minnie, I hope this may help you. I am now probably one of the worst allergic person I know as it pertains to drugs. If there is a severe side effect, I can pretty much count on getting it. For that reason, I get very anxious when starting a new medication or restarting a medication. I was in the worst flare of my life with major active bleeding when I was first diagnosed with CD. I would almost classify it as hemorrhage as I lost 5 units of blood in a months time and still needed 2 more units less than 2 weeks later. Anyway, I was put on Humira. It saved my life and I didn't have any major side effects. about a year of being on Humira, I started itching little and the Humira became ineffective so that was when I moved on to Cimzia. My point is that Humira saved my life and was one of the easiest drugs for me so I hope you can give it a try if this is what your Dr. is suggesting.

Take care!

Posted 2/1/2014 6:02 PM (GMT -5)
Hello minnietoty,

I really can't see you in a lot of pain. I've been reading all your posts. You're brilliant, well educated. I hope, you read a lot on the internet about CD. Why don't you just try some good things and get out of the pain?

I would recommend you to drink SCD yogurt shake. Yogurt with probiotics has the capability to heal the intestinal tract and replenish the gut flora. If most fruits trouble you, you can choose only one fruit and make yogurt shake without sugar. I've been feeling a lot better, since I started eating SCD yogurt for a month. You could buy culturelle Lactobacillus GG probiotic supplement.

I would recommend you to stop consuming junk foods, gluten, sugar, cola etc. You would definitely feel the difference in a few days.

I guess your intestine is too sensitive. You could do yoga to strengthen your intestine. Trust me. It really helps.
Posted 2/3/2014 7:15 AM (GMT -5)
Dear all, thank you very much. I really appreciate it. Will undergo upper and lower scopes and a ct enterocolonography and hope things go well.
I'll keep you posted.
Take care :)
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