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Crohn's Disease
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Posted 7/29/2016 8:00 PM (GMT -5)
When i was first diagnosed with crohns they said it was perianal and TI. Well i had a colonoscopy done back in December. It showed large internal hemmies. Well since then ive developed external hemmies too. My dr of course didnt seem concerned about them. However now when i poop (which is long and skinny but formed) my heemies stick outwards about 1 1/2 inches. It takes a good 20 to 30 mins to retract. Ive also been having belly pain since last night. Could all of this possibly be my perianal crohns flaring up. Or is it just hemmies. Oh i also have a fissure. And one more thing. Every month when i have my period i seem to have rectal bleeding on my heavy day. Could that be a fistula? I feel all alone with having to deal with this dreadful disease. My family think i use it to get out of doing things...like keeping an immaculate clean house. Im always having to take naps. Im so glad i found this forum. I know i dont respond to most posts but i do read everyone of them.
Posted 7/29/2016 8:17 PM (GMT -5)
How much pushing/straining are you doing when you have BMs? What have you tried to treat the hemmies? Preparation H? Hot baths? Where is the belly pain? Hemmies are unlikely to cause belly pain, at least in my experience. Some people flare when they go on their periods due to the hormone changes.....are you sure that it's rectal bleeding? Sometimes all down in that area I have a hard time telling what is coming from where! One of the biggest signs of a recto-vaginal fistula is when you hold in gas, does it come out your vagina? If it's large enough for period blood to go through it and down the rectum, you would most likely have gas as well.
Posted 7/29/2016 8:18 PM (GMT -5)
I think you should get in to see your GI and have him/her arrange for some diagnostics. Perhaps a MRE, which is non-invasive. You really need to get a clear picture of what's going on.
Posted 7/29/2016 9:20 PM (GMT -5)
i have had occasional gas bubbles come out the vagina. Possitive the blood is rectal. It comes out when i have a tampon in. Sorry guys tmi. I have a steroid ointment with lidicaine. It numbs it for a little while. The belly pain is left side and across the top. It also hurts where the hemmies are. Ive had surgery once before for a huge hemmie that was torsioned. It hurt extremely bad. Ive also had an abscessed anal skin tag
Posted 7/30/2016 4:23 AM (GMT -5)
I think you need to give your GI a call and possibly get a CR surgeon involved. Gas coming out of the vagina is almost a guarantee of a RV fistula.
Posted 7/30/2016 9:50 PM (GMT -5)
Well im now in my least favorite place...the ER. Iwill keep u guys posted.
Posted 7/30/2016 11:51 PM (GMT -5)
Agree that you need to check out fistula and get a clear diagnosis
What meds are you on?

Good luck!
Posted 7/31/2016 4:42 AM (GMT -5)
i really wonder where er drs get their degree from. At first they gave me dilaudid for pain. That totally knocked me out. Then pain was coming back so they gave me toradol. A few hours lafer another dose. Well it turns out toradol is a nsaid. I have a history of intestinal ulcers in small intestines and crohns.. Im not suppose to take nsaid meds. They think i have diverticulitis. I just had a ct scan done.
Posted 7/31/2016 5:07 AM (GMT -5)
I just got the ct results. Does not show a fistula. However i do have inflammation in my descending colon and a hematic ovarian cyst. Also they r trying to kill me. They just brought me percacet. I can take those it drops my blood pressure dangerously low like 70/40. Its in my chart. Do they seriously not read it!
Posted 7/31/2016 7:58 AM (GMT -5)
Bucko, I am so sorry you are going through this.

Do you have someone with you to help watch?

Stay vigilant and let us know how you are.
Posted 7/31/2016 10:16 AM (GMT -5)
Well i didnt take the perc. They brought me vics. Then they told me i had the option to stay or go home. I chose to go home. I had to call someone to come pick me up tho.
Posted 7/31/2016 4:11 PM (GMT -5)
Where do you live? It might be worth it to go to a different ED
This one sounds scary.

Maybe try an academic medical center with specialty in IBD
You need to be treated properly.

Sorry you went thru that it sounds terrible.
Posted 7/31/2016 4:39 PM (GMT -5)
i live in north carolina and i went to unc which is an academic hosp. Ive never had this problem with them before. But tylenol sure isnt helping with the pain.
Posted 7/31/2016 4:46 PM (GMT -5)
I've heard of them. Supposed to be good, did a gastroenterologist see you? Or just emergency docs?

What does your GI say about all of this? Do they have an emergency or after hours number? Or do you call regular number and answering service takes the message?
I think now might be a good time to use it.

I have heard that Millie long is a cery good Ibd doc. Dunno if you want to try contacting her or not...
Posted 7/31/2016 4:59 PM (GMT -5)
no gastro saw me. Just saw er doc. Im thinking about switching over to a new gi dr at duke. I know 2 people that vo there and have been quite pleased
Posted 7/31/2016 5:29 PM (GMT -5)
ugh, that is not right that they did not call for a GI consult. You should let your GI know about this, and make a stink about it becuase you dont want it to happen again. to you, or anyone else
Posted 8/3/2016 12:13 AM (GMT -5)
well i sent my gi dr an email about what all took place at the er. And of course she hasnt responded. I xont even know what the lab results were at the er. I was pretty out of it on pain meds. Since ive been home by bms have been very loose and 5 to 6 times a day. I tried walking my dog tonight and i ended up in a lot of abdominal pain. Also i got this place on my buttocks, about an inch or so from my anus that really hurts when i sit. Its hard and larger than a marble. Im hoping its just a boil that hasnt come to a head yet. Im sooooo scared it could be an abscess or worse...a fistula. I guess time will tell.
Posted 8/3/2016 8:02 AM (GMT -5)
I can't remember if you're the one with the female GI who sounded totally rubbish but if you are, you should switch - we need good doctors for our disease.

Not sure about the boil, but I think you should get it looked at :-/
Posted 8/3/2016 8:25 AM (GMT -5)
yeah i got the crappy dr. Im trying to get my gi dr switched but i have medicaid and it can take up to 30 days to switch drs.
Posted 8/3/2016 8:35 AM (GMT -5)
Yeah, I thought it was you...

Bureaucracy sucks, but 30 days wait - while not great - could be a lot worse. Can you still see your current GI while you're waiting to switch?
Posted 8/3/2016 10:51 AM (GMT -5)
Can you make an appointment for the other one
And just tell them you are in the process of working it out with insurance
Often it can take a few months to get in with the good Ibd specialists
Posted 8/3/2016 1:10 PM (GMT -5)
i emailed my pcp and requested a referal to a different gi clinic
Posted 8/4/2016 11:29 PM (GMT -5)
Well i never did hear back from my gi dr. So tonight i called the gi dr on call. I told her about my recent issues and problems. She seems to agree that i have a perianal abscess. So she went ahead and called in a prescription of ciprofloxin for me. Pray i dont get cdiff again. She also wants me to go to the er tomorrow (since the clinic is booked) and get the abscessed looked at. The plan is to lance it and pack it with gauze. She also wants to see whether or not a fistula has formed.
Posted 8/5/2016 4:34 AM (GMT -5)
I think that all sounds like a good idea. While taking Cipro, make sure to take a probiotic. I've found that Florastor has helped the best against c. diff. It is yeast-based, so you don't need to space it a few hours from taking the antibiotic. When I am on antibiotics, I take 4 Florastor per day (spread out or I get a stomachache). Then once I'm off the antibiotics, I taper down 3-2-1 every week, and I take 1 all of the time as a maintenance med. It's pricey, but it is so worth it.
Posted 8/5/2016 12:19 PM (GMT -5)
this morning the gi dr called again. They were able to squeeze me in to be seen in the clinic rather then the er. I saw the dr. They agreed it is a perianal abscess. They dont think theres a fistula. I dont see how they know that from just looking at it. Oh and this dr i saw was a hottie😘. I was told to start the antibiotics. If not better by monday then i will be scheduled to go in for surgery to lance and drain it. I go back to clinic in 2 weeks to discuss changing my maintenance meds since my ct showed inflamation in my terminal ilium. What do you guys suggest i switch to.
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