Crohn's and Blood thinners

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Sicilyny

New Member

Joined : Mar 2017

Posts : 1

Posted 3/29/2017 11:25 AM (GMT -5)

Hello Crohnies..
I am a Crohn's survivor of 42 years..No surgeries! I recently had a BKA..Below knee amputation of my left leg and blood clots discovered in veins and arteries. I am subquestionly on blood thinners, possibly for life. I am wondering if anyone has had adverse reactions from the thinners.. I am on sub Q injections daily of Arixtra.
I seem to have stomach pain and distention even though on 50mg Prednisone daily with a slow taper. I am still on Zantac, Protonic for GERD and Humira every 10 days. I need to switch Humira to a new drug as 4 yrs is too long to be in this.
I am very concerned about bleeding as my Hemoglobin fell to a 4 and I needed 4 units of transfusions recently. I am checked weekly for blood and a Doppler to see if clots have dissolved. Now my right leg is swelling although my amputated leg has healed nicely, but I am on bestest with legs elevated 24/7.

Any comments greatly appreciated..
I am a retired nurse and have hypertension, asthma, Diabetes with insulin PRN, migraines and anxiety disorder. I also care for my 14 yr old with Downs and Autism.

mirowpl

Veteran Member

Joined : Nov 2009

Posts : 590

Posted 3/29/2017 4:04 PM (GMT -5)

Hi Sicilyny, welcome to the group! I am on blood thinners for life, as I have a-fib and recently had a craniotomy (tumor) and open heart surgery for a MAZE procedure. before Heart surgery I was on cumidin, but have moved to Eliquis. things seem to be better with Eliquis as my hemoglobin levels, while lower than normal are steady and my anemia seems better. SO you might want to consider that if you go on thinner for life. I also did the shots while in the hospital for both surgeries and for 3 months after surgery, then switched to Eliquis. I was on HUmira as well, but switching to Entyvio soon. WIth Eliquis you do not need to have your levels checked.

I would be concerned with your swelling, while swelling is normal after any surgery, it cannot be ignored. Please have it checked by the surgeon. When I had my craniotomy, i had swelling and even had it checked but still ended up with seizures and in the hospital for another week. SO call the Dr.

I hope this helps

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