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Did anybody take a total of 12 mg of budesonide?

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Crohn's Disease
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Posted 5/13/2017 9:48 AM (GMT -5)
My GI wants me to switch to cortiment (9mg budesonide) since my rectum is not responding to Remicade and my proctitis is really giving me hard time. I'm very anxious that after being on entocort for more than 5 years, my intestines will be deprived from the daily dose of budesonide. My GI's rationale is that Remicade is effective with my TI so there is no need of it.

I'm going through a highly stressed phase in my life and afraid that any change would trigger a flare up. I was thinking of taking both cortiment (9mg) and entocort (3mg) with a total of 12 mg of budesonide. Did anybody try such a high dose before?
Posted 5/13/2017 6:35 PM (GMT -5)
Anytime I have taken Entocort I have started on 12mg and then weaned off when directed by my Dr. I honestly never found Entocort to be very effective for my Crohn's, but definitely didn't have any majoy side effects on 12mg. Hope this helps!
Posted 5/14/2017 10:09 AM (GMT -5)
Myrne, thank you very much.
Entocort has always been a life saver when we had to up the dose. I'll see my GI soon to know his opinion regarding taking both meds of budesonide.

Take care :/
Posted 5/14/2017 6:40 PM (GMT -5)
It's quite likely that 12mg would work better for me than 9mg, but I've never taken more than 9mg. And even if 12mg did work better, it would just stop working as soon as I stopped taking it - it's pointless :/

With proctitis, wouldn't it make more sense to try a budesonide enema rather than increase the oral dose to 12mg?
Posted 5/15/2017 10:25 AM (GMT -5)
I agree with NCOT on the enema dosing since it's "ground zero" for your inflammation. I always did better with the enemas since most of my disease was sigmoid downward. I assume you're worried about the drop from 12mg Entocort to 9mg enema without stepping down. Do you still have any Entocort capsules so that you could actually take 3mg every other day as a taper for a few days when you start the enemas? That would help with the transition.
Posted 5/16/2017 6:01 PM (GMT -5)
NCOT and JaSanne, thank you very much.
My GI refused the 12 mg dose and said 9 mg is the maximum dose.
For more than a year, I have been taking colifoam, which is a steroid, regularly not necessarily every day, without any effect.

Cortiment/Buidesonide MMX/Uceris any of them has got budesonide too but which dissolves in the colon and not in the intestines like entocort. Many UC patients have used it to treat UC proctitis. I argued w my GI that, as CD patients our inflammation penetrates all the layers of the intestines and colon, but he assured me it's effective. I have no other options to treat my rectal inflammation. I have been taking lately, on a daily basis, a pentasa suppository in the morning and a ciolfoam enema before bedtime but in vain. After 4 weeks, when Remicade's effect starts to wear off, though I feel it is ineffective for my rectum, pain escalates by a 9 or even a 10. I can't figure out why would my TI respond to Remicade while it is ineffective for the rectum. Quite weird!
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