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Holistic healing for multidiagnosis

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Crohn's Disease
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Posted 2/3/2018 7:08 PM (GMT -5)
I was diagnosed with crohn's disease in 2012, January. I had part of my terminal ileum, part of my large intestine, and my appendix removed in 2013. I have tried every medication known, and have been on Remicade for three years until this past November. In December of 2016, I was diagnosed with gastroparesis. I have tried all the medications for this disease as well, none that have worked. I am currently on a 90% liquid diet, taking only some supplements. I have quit taking all of the prescription medications, except promethazine when the nausea is too bad. I was wondering if anyone has had any luck with the holistic approach to either of these illnesses? I have read about the Jenny Elemental diet, but have not been impressed with some of the reviews. I would just like to know what has worked for some people. I want to get this under control before I have a flare since stopping the Remicade! I am at the point to where I am tired of using the doctors and their ignorance to treat these diseases.
Posted 2/3/2018 7:35 PM (GMT -5)
I'm sorry that you're having such a tough time. I really can't comment on holistic treatment approaches to treating Crohn's. Hopefully you'll get some suggestions here from some that have tried something that's worked.

I'm curious as to why you're discontinuing Remicade. It sounds like it might be working, as you're worried of a flare coming if you stop treatment. I know that you said you've taken every med, but have you tried some of the newer anti-TNF's? Stelera is getting some really good reviews, and is rivalling Remicade as the best treatment option we have.

As for the gastroparesis, it must be so frustrating to have to deal with that on top of everything else. Are you getting treatment for it? I'm no expert there either, but I know there are some drugs that are suppose to work well.

Hope you're feeling better soon. Keep us posted on your progress.
Posted 2/3/2018 8:47 PM (GMT -5)
Exactly what meds have you tried for gastroparesis?
Posted 2/4/2018 1:45 PM (GMT -5)
Thanks for the replies! I am discontinuing the remicade due to insurance reasons. And at this point, it really wasn't making a huge difference as to before I started it. Sometimes I wondered if it wasn't just the azathioprine that was working? As for the GP, I have tried domperidone it's only available from Canada) and reglan. I've also done papaya enzymes and lots of diet restrictions. Basically they told me there isn't anything they can do but year symptoms, thus my promethazine. Of course for 5-10000 (with insurance) I can have surgery. There is still no sir way to know if surgery will fix it. It's a pretty rough illness since it is still so new. We are praying that they continue to do research on meds to get more options available.
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