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New symptoms, Crohn’s related??

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Crohn's Disease
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Posted 2/9/2019 4:58 AM (GMT -5)
Hi everyone,
I haven’t posted in a while because I have been having no Crohn’s synptoms! Well unfortunately, I believe it’s back. I’ve been having the typical flare symptoms, D, nausea, severe pain, blood and mucous in watery stool, etc..
I went to the er 2 weeks ago because the pain was unbearable and I was worried I might of had a blockage because I had a hard lump on my lower right and left, felt feverish, and in bad pain. At the er my blood test was normal and they didn’t want to do anymore tests so they gave me
Pred and sent me home. My GI then told me to start on entocort. I’ve been on that since then. I’ve lost 10lbs and it’s not helping yet. I am 5’5 and 102lbs
This is where It gets weird. All day today I felt “off”. I felt like I was in a haze and my vision was a little fuzzy. Around 6pm I started to feel dizzy and light headed, followed by becoming flushed and feverish. My face turned red and was burning hot, and I got chills. Then the pain and Nausea came. I was lying in bed then all of a sudden I felt like I was going to pass out and began shaking uncontrollably. When this happened my mom noticed red rashes with white in the center forming all over my chest and some on my hands. I took half a pain pill due to severe pain. I calmed down after about 30 min, but then I noticed FOUR mouth ulcers pop up on my lower lip and gums. Wth?? I’ve never experienced these new symptoms. What should I do? Is this flare related ?? Please help I’m so confused and scared
I am a 21 year old female with Graves’ disease as well
Posted 2/9/2019 10:18 AM (GMT -5)
Hi Surfer, sorry to read that you are having problems. What maintenance meds were you on before all of this happened?

about the mouth ulcers, yes many of us get them from time to time. However, people that do not either crohns or UC can get them. You can try swishing with warm salt water, try some of the OTC mouth rinses. I believe OraJel makes a rinse that is like an antiseptic that has mouth ulcers listed.

Some of your symptoms sound like dehydration, you are losing fluids with diarrhea, it's very easy to become dehydrated from diarrhea, same with running a temp. You may want to consider buying some Pedialyte, it comes in various flavors. It will help restore your electrolytes.

I cannot comment on the rash, I have no idea. Take pics so your gi can see them. Considering how bad you are now, I would call for an appt with the gi asap.

Another possibility is, if you are worse now than 2 weeks ago, go back to ER. It sounds like that may be the wisest thing to do.

Right now there are so many people sick with various viruses. Just because you were seen in ER 2 weeks ago things can change since that visit. Consider ER.

I hope you get to feeling better.
Posted 2/9/2019 4:43 PM (GMT -5)
Did you have any stool tests done? Things like giardia, c. diff., etc. will have similar symptoms and not get better with steroids.
Posted 2/10/2019 8:06 AM (GMT -5)
You need further diagnostics done. I would recommend and MRE, as it's the least invasive, and concise. Some of you other symptoms sound like they could be viral related. If completely Crohn's related, then I think you need to be on something stronger to give you a jump start on getting things under control. I'm surprised your GI opted for Entocort over Prednisone. What are your normal maintenance meds? All we can do is make some guesses on this end, but the bottom line is, you need to get to your GI right away and get tended to.
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