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I have kidney failure and chrohns amcon dialisys and I'm 20 years old

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Crohn's Disease
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Posted 3/8/2020 2:03 PM (GMT -5)
I'm 20 years old and I'm having a colonoscopy coming up.I've had Chrohns ever since 2013,that's when I was diagnosed otherwise I think I have it before that, I was diagnosed with Glomerulonephritis in 2015 and I recently got diagnosed with kidney failure and started dialisys.I'm 19 years old about to be 20 in September.I suffer from tremendous emotional pain and I go to the hospital to stay there every month.I also have skin problems (diagnosed Psoriasis) and I don't know if in the future I won't be diagnosed with another autoimmune chronic disease.I take so much pills,I was treated with a chemotherapy drug recently, they stopped my Humira treatment and we don't know what else will work for me (it was pretty hard to figure out Humira works for me) and new drugs won't be paid for by the healthcare system because I'm on dialisys.And these drugs cost thousands, I cannot afford them , my mom doesn't work and my dad's salary is a 1500 a month.And I'm not talking dollars, I'm not from the States.There is a chance that my kidney disease can come back after a transplant so I don't even want to hear about it right now because my chances are very low for success.Im a short skinny girl with scars and a puffed out face from Prednisone and I have no one to talk to, I can't be understood by my parents and I don't want to talk about my problems to friends and I don't have access to a phycologist so people just tell me your opinions on my situation and tell me things.
Posted 3/8/2020 5:04 PM (GMT -5)
So sorry Texikka, you have a huge amount of things to deal with at a young age.

I had renal failure from Crohns, and it landed me in intensive care. Spent two months in hospital, surgeries, treatments, back and forth.... things can look very dark indeed.

Is your dialysis temporary, or are they not sure? It's so much for you to deal with, on top of the Crohns (and psoriasis).
Really, things can improve a lot for you, if they can treat the issues one at a time.
Money problems make everything worse... I feel for you.

Please hold on, and have hope that things can improve. It doesn't help to worry about future crap, when you already have enough going on! Take whatever care you can get right now, and try not to worry about the future. It's certainly possible things will improve for you in time. You haven't done anything wrong, just an unlucky grouping of issues. Although it's hard, you can be happy about how strong you are, and how brave you've been, and just be pleased about yourself in general.
It's up to the doctors to figure out your treatment, and your family and friends can support you (the ones who get it).
Find some good doctors who know the conditions well.
Please vent away here .... there are some genuine sufferers here who understand what happens when things are unbearable, complicated, and dark!

take care and always try to relax.... keep your nervous system calm smile

all the best.
Posted 3/8/2020 6:15 PM (GMT -5)
I feel so bad for your current situation. You're going through so much, especially considering your tender age. I do agree with the previous poster though. Just when things can seem so bleak, a breakthrough can so suddenly happen. For starters though, you absolutely need someone to talk to. Even your GI or Doctor should be seeing this and referring you.

I would think that your Doctors will be working on a treatment plan for what your currently facing as well. I'm no expert on kidney issues, but I do know that they are developing an artificial kidney right now. Not sure what stage they are at with this, but you're so young that I'm sure the advancement in this will come in your adult life.

Prayers coming your way. I so hope you get so optimism going for you soon. Please keep us posted. Things have to and will get better!!!!
Posted 3/9/2020 2:59 AM (GMT -5)
Thank you for understanding me and supporting me with your time and care.I do indeed need to be calm right now and your posts help me a great deal.To the second person who posted: I didn't know that they are developing an artificial kidney,this sounds really exciting.I hope that they make it so if my disease comes back it doesn't affect it and I can proceed with my life only having intestinal problems.I will be sure to read more about the artificial kidney development and hope it does indeed happen soon and that I can have access to it.
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