Posted 1/8/2023 4:26 PM (GMT -5)
Had my infusion on Wednesday. On the second day, I started to have itching but was hoping that the pred dose of 7.5 mg and Telfast would control it. On the third day, things became like crazy. I could hardly sleep because of non-stop itching. It is itching everywhere and it is not a sense of scratching but a feeling of stinging or biting in my hair, face, abdomen, hand, arm and even heel all at the same second and I’m not exaggerating if I say so. I contacted my GI as he recommended I should if I get any reaction. He ordered Infliximab antibodies test which I don’t know why I had to do it though I did. He also prescribed steroid injections for 2 days. I called and will see him tomorrow. The steroid injections along with the daily doses of pred and Telfast didn’t put the itching at bay. I’m very nervous and I do avoid to deal with my family members for fear that I might fight with them. This is the second time in a row that I get this reaction. Last dose, in November, my GI said that we would assume that something was wrong with the medicine. Now, it turned out that I have developed some kind of reaction towards Remicade. Remicade has been a life saver for me for 7 years and I’m really sad that would have to change it. Again, I don’t understand why my GI ordered Infliximab antibodies test but what I’m sure of is that I’m not going to take it for the third time. It seems that it is not working and I already started flaring up more than a week ago; that’s why, I took that dose a week earlier. I can’t think of any alternatives but what I hope is that the biologic I would get would treat both Crohn’s and my Hidradenitis Suppurativa as Remicade used to do.