Posted 12/21/2018 12:48 PM (GMT -5)
Hello everyone!! I hope you’re doing well.
For those who had the RNS stimulator, hows it working for you?
So, when I learned about the Neuropace stimulator I was really excited and got it implanted in 2015 on LEFT side of my skull. The seizures got worst. I never fallen before but a few days after the implant my husband found me on the floor and only the LEFT side of my face was bruised and I bit the LEFT side of my cheek and tongue. If I had seizures later I would only damage the LEFT side of my cheek and tongue. It was odd that it’s only LEFT side that gets damaged. My dr thought it’s my skull getting used to something new.
And now I get anxiety attacks! I’m a stay-home-mom. I didn’t get anxiety attacks when I was working, only seizures. I didn’t have anxiety attacks before RNS. Im Im a stay-home mom since 2015. During anxiety attacks I’m able to hear everything but can’t stop twitching and shaking and not talk clear.
Lately the seizures seem to be controlled a little better but I still get anxiety attacks.
Thanks for reading everyone