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Posted 10/24/2010 8:16 PM (GMT -5)
Hi everyone,

I have had fibromyalgia for about 15 years or so. I have some new symptoms and was wondering about having P.T. again. I have left (outer) hip pain that radiates to the front of my left knee and sometimes to my left groin area. I think it is fibro related because an xray showed only mild osteoarthritis. I do not want to have an MRI or anything extensive done. I just want the pain to go away! I have had flareups off and on since April. I had P.T. in May, but even though I liked this P.T., I dont think he knows that much about fibro and what he did seemed to aggravate the problem (too extensive stretching and exercise). So I stopped going and the pain eventually died down. But it still flares up and I am having a flareup now. I am using cold packs and they do seem to numb the pain for a while. Sitting in the car seems to aggravate it the most.

So my questions are:

1. Have any of you used Lyrica? My doctor talked about trying it. I use Tylenol and 1/2-1 Darvocet when the pain is bad.

2. Any recommendations on how to find a P.T. that knows more about fibro?

3. Anyone have similar fibro type symptoms? (my right hip is OK, though my right knee has severe osteoarthritis).

Thanks for any suggestions.

Posted 10/25/2010 6:28 AM (GMT -5)
It sounds like you have alot going on. You should really talk to your DR about other medications to help with your flare-ups.

I've just started getting stiff now and it's getting colder in my part of the country. It it was me I would have the MRI just to see why your left hip is the way it is. Lyrica may help but it's up to you. I can't even get pain medication from my DR now when my pain is really intense.

HARA

Posted 10/25/2010 6:41 AM (GMT -5)
Hi...I have that exact same pain.  It is in my hip, radiates down my leg to my knee.  It really aches and keeps me awake at night.  I just thought it was some kind of sciatica pain but who knows with this disease.  I don't take anything but Advil and Tylenol at the moment as the other traditional drugs made things worse, at least for me.  Lyrica, Cymbalta and other drugs in this class do help some people but I was not one of them.

Donna

Posted 10/25/2010 10:51 AM (GMT -5)
Hi Songwriter, I just wanted to welcome you to our fibro family. Im glad that you found us and Im sorry that you are in this boat with us. I have never tried Lyraca and Im not much help as far as PT's go. I have however run the gambit with pain in each and every part of my body at one time or another. Im wondering if gentle stretching exersizes might help. You might want to talk to your PT about the fact that you have fibro and cannot do any extensive stretching as this will irratate it more. You might want to check out fibro 101 at the top of the board. Sherrine has compiled alot of great links to go to. Hope to hear from you soon.
Gentle Hugs
Shirley
Posted 10/25/2010 11:53 AM (GMT -5)
Hi, Songwriter, and welcome!  Yes, this could be fibro.  Since you've been checked out, it probably is.  I get some of the strangest symptoms too.  Right now the "fleshy" part of my left foot, from right under the ankle to the top of my foot, feels like I dropped an anvil on it!  It's been this way for months and is getting worse.  Sometimes it doesn't bother me and other times I can't move my foot a millimeter without horrible pain.  I used to run to the doctor for these types of things, but he never found a problem and didn't know what was causing it.  So I just deal with it.  Fibro. 

 

Try moist heat.  Many here have a Bed Buddy.  You can get these at Walgreen's and other places or you can make one by taking a tube sock, filling it 2/3's full of raw long grain rice and tying a knot at the end.  Pop it in the microwave and it gives off moist heat due to the moisture in the rice.  If nothing else, it will feel good.

I don't take Lyrica.  I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D3 supplements to help with my pain and fatigue.  There are links about the supplements in Fibro 101...the first thread on the forum.   I see Shirley directed you there.  There are good links there and you can learn even more about fibro.  Seems I'm learning something new every day!

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 10/25/2010 5:20 PM (GMT -5)
Hi Songwriter,

I have hip pain too.  Only it is my right hip--doesn't radiate to the knee however.  It sometimes keeps me up at night and wakes me almost every morning.  With me, I know it is fibro.  Sometimes it doesn't hurt much, other times it is constant for days or weeks on end then will stop for a while only to start up again.  I take nothing stronger than asprin, I'm kinda med phobic and med sensitive when I do take something.

Welcome to our "little world of fibro".  There are really wonderful supportive people here with lots of knowledge and lots of encouragement.

Yo-yo

Posted 10/25/2010 7:24 PM (GMT -5)
Yeah my legs have been aching for the last couple weeks. That includes my heals of my feet. I called my DR today but haven't recieved a call back yet. I always have my bedroom warm now because it's getting into winter now. That seems to help a little also.

Hara

Posted 10/25/2010 8:46 PM (GMT -5)
Hi songwriter and welcome to the forum.  You got a lot of good advice above and I don't have anything to add other than welcome again.
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