Does anyone know of something that will stop the trembling?

I am new so wanted to say 'hi!' and wish everyone a Happy Thanksgiving first off

I was diagnosed in Jan 08 and been dealing with Fibro and MPS since fall of 05. I have tried different medications over the years but nothing seemed to help very much or the side effects were just as bad as what they were treating. I have been doing well enough by controlling my diet and making sure I take my supplements and listen to what my body is saying (which is an amazing feat as I am incredibly hardheaded). I have the typical flare-ups and there are the good and way too many bad days but a few months ago my muscles started trembling/vibrating. It was just the legs in the beginning and it was occasional but now it has moved into my torso and arms and sometimes my neck and face, even my tongue. (I have had EMG's and definitely FMS and not ALS, etc). And in the past week it has been constant. It is driving me crazy and I cannot sleep because of it which is making everything else so much worse. I vibrate/buzz so badly at times it makes my stomach upset almost to the point of vomiting. I called my DR but he cannot get me in until Feb 8th but I think I will be mad by then. I am on magnesium supplements and have tried valerian and kava kava as well as chamomile tea but no relief yet.

So I thought I would ask, beg even, for any advice as to what to try, do, anything. Sorry for the length and thanks for any advice you can offer!

I'm sorry, Newt, that sounds awful! I can't help with this either, but I'm sure someone or other can. Welcome!

Debbie

Hi, Newt, and welcome!  I'm so glad you found us and joined in.  Happy Thanksgiving to you, too!

 

I will get muscle jerks in small areas but not like what you are describing.  I know I would want to see my doctor sooner.  Most doctors reserve some time each day for "emergency" visits.  It's so difficult for me to call the office and see the doctor but I call his nurse's extension instead and let them know that I'm having a problem and need to see the doctor. I usually get in that day!  The receptionists can't do that.  So, see if your doctor has a special nurse and what their extension number is.  You can describe what is happening to you now.  I'm sure he/she'd what to see you!  It could be something besides fibro going on.

 

My only other suggestions would be a gentle massage.  Those help me a lot and that might calm the muscles down.  Here is a link to find a good massage therapist close to you.  The people in this organization have to contiune their massage education yearly or they will be dropped from the organization.  Gentle massages help...deep massages usually don't and can hurt you.

 

http://www.amtamassage.org/findamassage/index.html?utm_source=%2Ffindamassage%2Flocator.aspx&utm_medium=web&utm_campaign=redirect

Be sure to check out Fibro 101...the first thread on the forum.  There are links to good information about fibromyalgia and you will learn a lot there. 

 

I'm looking forward to getting to know you better.  I do hope you get some answers about your muscular problems, too.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Thank you for the welcome and the advice. I am sorry to not get back here sooner but between not sleeping, Thanksgiving, and my daughter being on the George Washington (the aircraft carrier doing war game with South Korea), I was/am not doing all to great.

The problem with my doctor, at least in what I believe, is that he he new to me. I had been seeing a different doctor for the past few years and for my last visit he was not there and all they will tell me is that he is no longer with the practice. It is too odd - they are pretending as if he was never there and he was a very good doctor. The new one does not believe in fibro, or at least that is the feeling I get, so I am probably going to have to find a new one. When I call, I cannot speak to a doctor, only a nurse and am told if it is that bad, to go to the ER. The ER does not want to do anything but prescribe heavy duty pain killers and say to make an appointment to see the doctor. It is so frustrating.

I have been resting as much as possible and my husband has been massaging the most active areas for me. I have tried the Epsom salt baths and keep with the Valerian as well as some Kava Kava tea and supplements (magnesium, B's, etc). I am trying some stretching as well as deep breathing - anything to get some relief at this point.

I will let you know if I get into the DR or find a miracle that will stop this, but then being fribro, it may just stop when its ready.

I just don't understand why some doctors do not "believe" that fibromyalgia is a legitimate illness. The American Collegeo Of Rheumatology accepts it. My first rheumatologist...way back ten years ago...did not believe in Fibro. He didn't believe in treating early RA either. Go figure! He was a real jerk. I see other patients in my rheumy's waiting room that have also gone to the first rheumy I saw. We all agree, not a nice man, not compassionate, etc. I wonder how he stays in business. I guess because there are so few rheumatologists. One thing I know for sure, you don't want to see a doctor who doesn't want to treat your Fibro. I hope you find a new doctor soon. Best Wishes, V

I to have the trembles it can be quite scary and annoying! I have yet to find an awnser or anything that really works, so I do wish you good luck, the only thing that seems to help me is to take a break and relax when I get the trembles which is hard with to small kids. Hang in there I hope you find some relief soon!