New here

Hello everyone,

i was just diagnosed in july of this year with Fibro. but after hearing my story the doc thinks i have had it since i was 13 (as do i) its actually taken some time to get used to having a diagnosis. i thought when i finally found out what was wrong with me i would feel good about it, instead i spent weeks depressed. I think i really wasnt expecting it to be that. and im so young (26 at the time of dx 27 now) that i just feel like i was handed a death sentence.

i guess i really hoped that once we finally figured out what was wrong with me that it could be cured/ fixed/go away! but as we all know all too well, this doesnt go away. sigh.

anyway, im a newlywed with an amazing husband, who loves me despite all this. The doc started me on some meds that do seem to be helping some. which is a relief. i have quit my full time job as a nurse since the stress alone was killing me not to mention the terrible hours. i want to work at least 1 day a week as a nurse but so far cant find a job that is willing to accommodate that. in fact i was fired from my last job for having fibromyalgia. when i asked to go part time due to being diagnosed with a chronic health problem just until the treatment was worked out (the first few weeks on the treatment i was having flair ups galore) they told me to never come back. so lets just say that didnt help the depression any.

the 2 things i really despise about fibro, are the fibro fog as i always feel like im living in la la land by myself, and the horrible fatigue. i can almost deal with the pain if i wasnt so tired all the time. some days i feel like pulling myself out of bed is the hardest thing in the world. and then when i get up, i still have no energy.

to help with finances some and to make me feel better about myself, i started my own little online business selling handmade items. its helped alot with my depression and since im now my own boss, if i have a day where im just feeling awful and cant work, i DONT! lol no worries about getting fired. :)

So far we dont have any children just a dog. she is such a blessing to me. she keeps me going when i really feel like giving up. she also helps me stay active which, as we know, keeps the pain down. She is a cutie! my husband too is just amazing. he helps around the house and understands when i am unable to do much so hes learned to either live with a messy house or clean it himself. most of the time he cleans it! thank God for wonderful husbands.

well im sure thats enough of an intro from me. im glad i found this board. it will be nice to have others to talk to who understand what im going through.

Shannon

Hi Shannon and welcome to our fibro family, I am so glad that you have found something to help out with the finances. I am so sorry that your last job fired you, have you ever thought about checking into your rights on this matter. It seems to me that if they could have made reasonable accomodations for you then you would have a case against them with the Americans With Disabilities Act. The only problem with this is you have to make a claim within a year of being discharged.

You didn't say how long it has been in your post. Any how feel free to post anytime with questions, vent if you need too or offer advice to others. Hope to hear from you soon.
Gentle Hugs.
Shirley

Hi, Shannon, and welcome!  I'm so glad you found us and joined the family!  Well, fibro is not a death sentence and I'm very thankful for that!  We don't even end up with deformed joints other illnesses.  Yes, we do have pain and fatigue but we can try to find things that help us with that.  I have had a full and enjoyable life in spite of fibro so if I can do it, so can you!

 

Fibro fog...you must have a great sense of humor to deal with this.  I thought I was coming down with Alzheimer's when it first kicked in.  Scared me to death!  Now I laugh at it.  If you stress over it and get upset, it seems to be worse.  But if you can laugh at  yourself, you will be fine.  I've tried to start my car with the key to my freezer...twice!  I'm sure that won't be the last time, either!     But, hey, we're lovable! 

 

Fatigue is a tough symptom.  Be sure to have a sleep schedule.  Go to bed at the same time and get up at the same time.  This helps your body know that when you go to bed, you are to sleep.  This has helped me sleep better.  I also take malic acid/magnesium supplements and they have helped me with pain and fatigue.  You have to try things to see what works best for you because what works for one with fibro doesn't necessarily work for another.  But never give up.  We have good ideas here, too, to try.

 

Be sure to check out Fibro 101...the first thread on the forum.  There are links to good information about fibro and you will learn a lot there.  Knowledge is power!  There is a link about malic acid/magnesium supplements and how they work in the body and also a link about vitamin D3, too.  If you are deficient in D, you can have more pain!

 

I'm glad you have a wonderful husband.  That is a huge plus with this illness. 

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.

 

Sherrine

Don't you have pay stubs?  Don't you list your place of employment on your federal tax forms?  You must have some documentation on your tax form because they needed to take out federal, state, and FICA taxes.  That would be your proof. 

 

I edited your post above because you put your blog address in there.  It is selling products and is against our Forum Rule #5.  Please read the forum rules and please take the address out of your signature.  Thanks!

 

Sherrine

Please read rule #5.  You are selling things in it so you have vested interest.  Also, I had to edit out the address again.  Please take it out of your signature.  Thanks!

 

Now, if you have pay stubs and copies of your taxes the years that you worked there, that is proof you worked there.  It shows they took out taxes, etc.  That proves they are lying.  Perhaps the person you talked to wasn't that informed because if you can prove you worked there then they should be able to do something about that.

 

Sherrine