Hi everybody

Hi my name is Renee

I have posted on a few forums now,  Im just now really checking into all the problems I have been having so no Out come yet ,  I had Hep c and did treatment 4 different times and cleared on 07, But after these treatament I have never felt the same again, The treatments were close together, and very hard to handle,  I have dealt with chronic pain and migrains since, In the last few years I have even felt worse, I started with having problems with falling and my brain doing qurky things, I also was in  a car accendent in 2004 and have 4 Herniated Discs, I went to a neurologist a few years back and he siad I was borderline for surgery But the same doctor is no long on my insurance, So a year and ahalf ago I went to a new neurologist because of My migrains and pain over all  When I first went to hear I felt she didnt hear me talk at all when I asked her about Fibromyalgia she told me that it was a cop out diagnosis when a doctor cant find out whats wrong , And I knew I couldnt talk to her about that, I asked about my disc and she said she felt that wasnt what needed to be taken care of But she gave a book she wrote on migrains and I read it I do want to follow through, But I didnt go back until a few months ago when I was feeling worse  a shifty feeling in my head that made me feel off balanceand such she had my Mris and a 5 starr  doctor LOL so I thought I would give her another chance She did another mri of the brain no changes there and a she did a ana test which came back postive pattern Homogeneous, what ever that is and then some other blood work for lupus and tested me for Ms with a lumbar puncture test,Then sent me a email,  other tests came back normal have a great weekend,   No answers on anything. I have a appt with a rheumatologist, So maybe just maybe I can get answers, This is my short version ,LOL I posted on chronic pai also and felt I was writing a novel So nice to meet everyone , And sorry so many suffer from such painI also work at a phamrcy 9 hour days Not allowed to sit except our 30 min lunch which Im truly having a hard time with , But I see so many that really do suffer, In my job I also deliever meds to people who cant get out or dont have a way to pick up,I find myslef hugging alot of people everyday I so hate to see people suffer, evan though I know its part of life, So My hope for today is  That each of you have the best day you can have with what is going on in your life

always Renee

Renee welcome to the fibro forum! I am sorry to hear all the problems you are having. I can feel for you on the disc problems. I fell out of a chair and landed on my neck. I got up like a fool and went to work. I started having severe pain so I went to the Dr. They said, you have some disc problems and will just give you an injection. I had them done, with no relief. Went back to work and my arms started acting up with continued pain. Went to ER and next thing I knew I was being prep for Emergency surgery for spinal cord compression. I was mad at my Dr. because they played around for me for weeks. It took them 13 hrs for surgery to rebuld my neck. I now have all bolts and screws in my whole neck with grafts. I was in the hospital a month. I guess what I wanted to let you know that I hope they gave you a right diagnoses on your neck. If you continued to have problems you might want a second opinion. I have a lot of symptoms of lupus and ms, but never found in the blood work. I had one part of my ana postive, but the rest negative. I went to a specialist just knowing they were missing something. I would ask myself, how could one have all these symptoms. Long story, but all it has came out to be is fibromalgia. I am doing much better since I started here on the forum. I leaned how to manage my crazy symptoms now.

Hi Renee,

I worked in the hospital as a nurse for several years. I did not learn anything about fibro in nursing school, which was probably around 2001-3, I guess it was still really new then. Anyway I remember one time I had a pt that said she had fibro and since I didn't know anything about it I can say that I had a hard time believing her. Then about a year or so later I started having symptoms and didn't know what it was. Eventually after taking a lesser paying job and job title (ouch) I was diagnosed with fibro....and last year I had to quit work. Now I know what that pt was suffering. I have been tested for everything under the sun I think. For years I have had a severely dengenerated disk which caused it to rupture in my lumbar spine, and I just found out I have 2 in my neck. I really didn't think my 30's was suppose to be like this. Although we did get breaks working on the hospital floor I ran my butt off most of the time..alot of times missing meals, holding my bladder to long and I started working nights which totally screwed my system up. It sounds like you have had a lot of tests too. I hope you get some answers from your rheumy. Mine doesn't really take it seriously. It's sad, because coming from a medical field, I have seen so many mds chalk it up to needing drugs or depression. I HATED when my md asked was I depressed, don't get me wrong I know it can cause pains, but this was no ordinary pain. If anything the pain caused the depression. Well I could go on, I hope you are able to something with your job, I am still in debt over student loans and I told my husband if I knew this was gonna happen I would have never went.
ON the brightside, God has helped me through alot and I am glad it has brought me closer to him and to see people's sufferings different, I can relate now.

Karen

Hi, Renee, and welcome!  I'm glad you posted and joined our family!  I know I asked you to introduce yourself in another thread but then missed your introduction!     I'll blame it on fibro fog.  LOL

 

You do have a lot on your plate and I will be praying that the rheumatologist can help you.  In Fibro 101 there are links to a journal and also pain charts.  Why don't you print out the journal and then list activities that you do and score them as to how you feel when doing them by using one of the pain charts.  Print that chart out, too, and take these to the rheumy appointment.  That will help them a lot in seeing what is going on with you. 

 

Stress is unreal for fibro.  I lost my precious dog six weeks ago and was hit with tremendous pain.  I can barely walk and my rheumy is working on this with me.  I just bet most of my problem was caused by stress from grief.  Time will tell but stress does a number on a person...especially if they do have fibro.  You could have fibro and something else too.  Most of us have other illnesses perking in our bodies along with fibro.

 

Your second post was FAR better as far as typing goes!  I need to repost a reminder.  Members forget and just get typing and it really is nearly impossible to read.  I always lose my place.  So, you did just great!  Thank you.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine