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Shaky and achey, could it be this?

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Fibromyalgia
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Posted 3/10/2015 9:09 AM (GMT -5)
Hi everyone,

I haven't been on in a while. I actually went four months without a flareup. A record. I'm having one now that came on with a vengeance. Is it possible to be so sensitive that daylight savings time triggered it?

The only thing that helps me sleep is a little valium. I take 2 mg. (or as much as 5 mg) at night before bedtime. My doctor doesn't want me to get addicted and will not be refilling an Rx. It's the only thing that works and even Dr. Weil speaks about a connection between valium, and it sometimes helping fibro. I stopped the valium for 6 nights (I did this about six months ago) and the same thing happened. By night 6 or 7 I was unable to sleep, feeling shaky and achey. I supplemented with Neuroscience Kavinace, Calm PRT, 5 HTP, and Gaba (all work to calming the neurotransmitters). Could the change have triggered this? Last night I was back to the valium but it didn't help much.

I also went back to the gym two weeks ago. Just two times a week of mostly stretches and floor exercises. Maybe it was that?

I have a holistic integrative doctor who wants to try immuglobulin therapy on me. Anyone try this?

We are a bunch of detectives on this board! Hope everyone is feeling good. Thanks for listening.

Best,
Huddie
Fibromyalgia, hypothyroidism, thyroid meds only
Posted 3/10/2015 9:13 AM (GMT -5)
I know for me, when I start to exercise again, it starts off a flare. I can usually work through it, but sometimes it just doesn't work. Walking does not seem to set it off, but other types of things do.
Posted 3/10/2015 9:32 AM (GMT -5)
Thanks Asheline. I do keep hearing that. I'm not sure why that is when exercise is so beneficial. I felt great right after it and it does seem to take a day to recover. I do not do anything taxing. Does this mean most of you don't exercise or is walking all we can really do? I guess I'll stick to walking and yoga. Thanks.
Posted 3/10/2015 10:27 AM (GMT -5)
Huddie, have you tried melatonin? It's more a natural product and it does help people sleep. I put myself on a sleep schedule plus I don't have caffeine after mid-afternoon and that includes chocolate. I also do something calm, like watch TV before bed and all of this helps me.

I think going to the gym could have triggered this. I'm just guessing but it makes the most sense to me. Exercise helps with the pain and fatigue...GENTLE exercise like walking or swimming or yoga. Some have success with Tai Chi, too. If I went to a gym, they'd be carrying me out on a stretcher. I walk daily and swim in the warm months. I don't feel like heading out the door but just walking and observing nature puts me in a great frame of mind and by the time I get back home I have less pain and more energy. It really does work.

I took Valium for over a year and got off it. You should really try too. Maybe your shakiness and pain reaction was a type of withdrawal.

Sherrine
Posted 3/10/2015 10:39 AM (GMT -5)
Sherrine,

Thank you so much. It helps that you were also taking valium. Not sure it was withdrawal from valium because my dosage was pretty low and I felt good the first few days. Someone on here told me a while back that when our neurochemistry changes in any way it can trigger a flareup. I've tried melotonin and it kept me awake and made my heart pound. Perhaps I wasn't taking it correctly. I may try I also tried Kavinace Ultra pm (which has melotonin in it) and had same reaction. I guess it's walking and yoga for me. Thanks for your positive words. How long did it take you to get off the valium, what was your dosage? My issue is that I must be up at 6:30am each day and if I'm up all night I'm useless. Thanks.
Posted 3/10/2015 11:35 AM (GMT -5)
I was taking 5 mg four times a day. I was in a fog and it was affecting my personality. I just wasn't the same person. My mother kept pointing this out so I took myself off it. I didn't wean myself off it since I didn't know to do that. I was suffering from anxiety at the time so what I was feeling I blamed on anxiety. But I'm so glad I got off it when I did.

Sherrine
Posted 3/10/2015 12:04 PM (GMT -5)
Sherrine,

Thanks for sharing your story. Wow that's a lot. You quit cold turkey. You are one strong lady. How long did it take you to feel ok and how long until you slept through the night? YOU will be my inspiration. If you can do 20mg a day ct, surely I can do 2-5 mg. What brand and dosage of melatonin do you like? I bet your mom is happy now. Feel good!

Best,
-H
Posted 3/10/2015 1:52 PM (GMT -5)
i don't take melatonin. I do a sleep schedule and no caffeine after mid-afternoon. Once my body became used to it I had no problems sleeping.

I also do something they say never to do...watch TV in bed. My husband always did so that's what I became accustomed to. But, I usually only see about 15 minutes of a program before I'm out like a light. Then, when I wake up to use the bathroom, I'll turn the TV off and fall right back to sleep.

Sherrine
Posted 3/10/2015 2:15 PM (GMT -5)
Wow so you don't need anything to go to sleep. Now I am really hopeful. I only have one cup of tea at 6:30am and not other caffeine, no sweets either. My cortisol is also off so that is probably the real sleep issue. Tv and computer wake me up. I read before bed and that helps. You really have been an inspiration to me. I know I can do it. Thanks. I love that in one day someone we don't even know can help us to feel better. Thank you.
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