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massage and Fibro

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Fibromyalgia
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Posted 7/30/2015 9:05 PM (GMT -5)
Hello all
I'm new to this message board but have had fibro for a long time now. When being massaged over trigger points I feel intense grimacing pain like I have shards of glass radiating out in all directions. I am wondering if this is a common sensation for fibro sufferers. Even if I apply mild pressure myself I can cause discomfort!!
Posted 7/31/2015 12:21 AM (GMT -5)
We can be so sensitive to things...things that would not hurt others can be painful with fibro...

Welcome to the forum...

I cannot use regular tools for trigger point, like a foam roller or a tennis ball. But i can release trigger points with.softer tools like a pool noodle or a soft stress ball..

We have to adapt other ways to help ourselves
Posted 7/31/2015 6:09 AM (GMT -5)
Hi, Oucheez, and welcome! First of all, when I get a massage I get a gentle massage. A deep massage would be too much for me and the gentle massage does give me wonderful relief.

When I work my trigger points I use my hands. I find the trigger points causing me problems, press on them as hard as I can stand, and the massage that area. Then I repeat it and then leave it alone for a few hours. My massage therapist taught me that and I use The Trigger Point Therapy Workbook to help me find the trigger points that are causing me pain. I fixed my frozen shoulder this way. You can find the workbook on Amazon and other places if you do t have one and are interested.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about Fibro and you will learn a lot there. I've had Fibro for 28 years and am still learning new things.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 7/31/2015 9:00 AM (GMT -5)
I've been told that people with fibro shouldn't have a deep tissue massage. Swedish massage felt nice for me, but seeing my cranial sacral massage therapist does more for me than any of them. It's not a temporary fix. It's beneficial.
Posted 7/31/2015 11:43 AM (GMT -5)
Welcome!

I mostly love massages. It feels so good, and then I am happy. My muscles are happy.

Until--about three hours later, when I cannot move. Some of the time.
Posted 7/31/2015 7:13 PM (GMT -5)
Myself, thats your body releasing toxins...happens to me after gentle manipulation therapies...but the next day i feel better
Posted 7/31/2015 8:40 PM (GMT -5)
I have a massage therapist that is a genius. She can work out the "lumps" of painful muscle/tissue that I develop especially in the upper arms. She says she specializes in "medical massage" on her card, meaning that she is very good at helping with fibro and even my sciatica and stuff like that.
It does get to hurt if she is really going at a spot, but it is worth it later for the relief I get.
HEART
Posted 7/31/2015 10:32 PM (GMT -5)
I am one of the weird ones that can generally handle deep muscle massage. My massage thereapist also does medical related procedures and has gone out of her way to be 'up' on what relates to what I am dealing with.

The thing that we have found to be of the most help is cranial sacral therapy. She started this in the last year and I have found it more helpful for me and to have longer term benefits. After a deep muscle massage, I feel good for 1-2 days. The results of this are cumulative and with sessions every other week, I have noticed marked improvement.
Posted 8/1/2015 10:39 AM (GMT -5)
Thats great jenni,

Glad you found a good one!
Posted 8/1/2015 1:41 PM (GMT -5)
Yes, I agree with you. I always hurt a lot when someone touches me, even if it is a gentle and a light massage. I even hurt when I get a pedicure and they rub my legs with lotion. I got the sea salt done to my legs to clean off the dry skin but I thought I was going to die. It's all I could do to contain myself, the pain was excruciating! So I just skip that part now.
As far as massages, I would keep trying to find a therapist that is familiar with fibro because it does help and if they are gentle enough, you can get through it. Then drink lots of fluids to flush out all the toxins. It will help and get better in the long run.
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