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If you could get rid of one symptom of fibro what would it be?

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Fibromyalgia
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Posted 3/17/2018 11:53 AM (GMT -5)
This is a hard question, I know but I'm wondering if we all tend to agree or mostly have different thoughts.

I would get rid of the fatigue, I think because I can cope with everything else better when I'm not tired, especially my very foggy brain. I used to be focused and sharp now I'm slow and mess up a lot. It gets so embarrassing sometimes especially when there are people around that didn't know me before. Plus, I miss out on so many things in life that I want to do but am just to tired to do it.
Posted 3/17/2018 1:07 PM (GMT -5)
The migraines. The head pain is so hard to deal with.
Posted 3/17/2018 5:12 PM (GMT -5)
Difficult question---there are several things, for sure.

I guess I would put nerve pain at the top of the list. No matter where it hits, it's super painful, annoying, and can put my day out of whack! sad
Posted 3/17/2018 9:22 PM (GMT -5)
Muscle pain
Posted 3/17/2018 9:24 PM (GMT -5)
Lendi, you may want to research corvalen m, helped me a lot with fatigue for many years, until my vit d crashed..it still helps , but before the vit d thing.i would drink it and get busy.

Off brands are less expensive
Posted 3/18/2018 5:35 PM (GMT -5)
Thank you, Ljm2014 I will check into it. I am always open to new ideas. I do take a prescription drug (provigil) which sort of works but it's sure not close to perfect.
Posted 4/2/2018 8:38 PM (GMT -5)
FATIGUE.

Definitely the fatigue.

Barb
Posted 4/3/2018 12:50 AM (GMT -5)
Fatigue and malaise....
Posted 4/3/2018 7:05 AM (GMT -5)
The “It’s all in your head” symptom. I think too many doctors try to treat us but, in the back of their minds, they are thinking all these weird symptoms that we report are just figments of our imagination, I just mention the pain and fatigue part to my doctor and leave out the buzzing, cold spots, water running down my leg symptoms, etc.

I think the members who do the best are the ones who try various things and find what works for them. We know what we are going through.

Sherrine
Posted 4/3/2018 9:13 AM (GMT -5)
Sherrine:
A word I read associated with fibromyalgia is biopsychosocial disease.

If you break that down bio - biological
psycho - mind
social -

So prolonged high stress to the body causes physical changes to the brain (my therapist told me that), affects the mind, what the social part means I don't know. Fibromyalgia.

What do you think?

We stayed in the Villages 2 months and my husband drank the Kool-aid so to speak. We are up north selling our house and have already bought a home in the villages. I felt so much better there in the warm sun! so happy to be moving down there.

Barb
Posted 4/3/2018 12:09 PM (GMT -5)
For me, the pain is the worst. I can push through the tiredness and feeling weak and get my motor running (to some extent) if I don't wind up paying the piper for it with increased pain. But there's such a fine line between just enough activity and - oops! - too much.

Debbie
Posted 4/3/2018 12:13 PM (GMT -5)
I’m a little more than an hour drive south of The Villages. It’s a beautiful area. And. I’m so much better since moving to Florida. The summer rains were tough at first but I got used to them now...plus I like be storms! Crazy, huh? My Mom taught me to love storms and not be afraid.

I believe the stress affects your body and not the mind. Stress causes pain as well as anxiety and can affect even organs in the body. This has happened to me many times. But stress has not affected my mind. I have a strong mind, a joyful mind, and a thoughtful mind. When I say thoughtful, I mean I can think clearly and figure out how to work around fibro. There is nothing wrong with my brain and I definitely will not claim that either.

The social part is, I think, that because of our pain and fatigue we back out of things and eventually can become reclusive if we don’t watch ourselves. Many times I don’t want to do something and want to stay home where I am the most comfortable, but I have learned to push those thoughts aside and go for it. And 99% of the time I end up having a wonderful time and am so glad I decided to go. I have taught my children that life is made up of choices. Hopefully we make mostly good choices for ourselves and don’t underestimate what we are capable of doing.

I hope my explanations make sense to you.

Sherrine
Posted 4/7/2018 8:34 AM (GMT -5)
I have trouble finding that line too, Achey. But, it's the fatigue from doing too much that really knocks me out.

Some of the mind stuff could be depression. It's hard to be upbeat, smiling, laughing if you're in pain. I adore my family but sometimes it's just too much. Then, as said, you stop going places which can make you sadder which can mess with fibro etc. It's an endless circle. There are ways to control it all, though or at least deal with it better.
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