Liz, we do talk about supplements. The dietary solutions help those that have the co-existing problems that are discussed much more thoroughly on the digestive forums. They discuss the gluten free, dairy free, paleo diets. They discuss what food help them with their digestive problems, whether it be IBS, celiac, Crohn's, food allergies and sensitivities, ulcerative colitis, etc. Some of these are co-existing illness with fibro but not fibro.

I have fibro and Crohn's and I'm diabetic. With Crohn's disease and diabetes I have to watch what I eat or I will run into problems and not feel as good. I do not come here to discuss these two problems. I go instead to the Crohn's and diabetes forums. The members dealing with extreme pain, stress, no sleep, losing their jobs, medication side effects, and a myriad of other problems should not have their posts knocked down because someone wants to discuss gluten free diets, etc. I have seen newbies' posts halfway down the page with maybe one person welcoming them. I know you are new here but that is not how this forum was. I probably was too lenient about keeping things on topic but I never imagined it would snowball like it has and it needs to be stopped. The information is on HealingWell and easily accessable.

We will continue to talk about supplements. We can discuss things like food additives that cause more pain, heart palpitations, etc. but we will not be talking about gluten free, dairy free, numerous diets that are out there, etc. because these are covered in the digestive forums quite thoroughly. This forum is for discussion of the hallmarks of fibro...overall pain, fatigue, sleeplessness, relationships hurt because of this illness, medications, supplements, side effects, and a myriad of other things that affect us. Most importantly we are here to give hope to people and help them live successfully with fibromyalgia.

I hope this has clarified things for you.

Sherrine

Liz, I think what Sherrine just said about this forum being for discussion of the "hallmarks" of Fibro is the point you are missing. We can't be all things to all people. We have to make sure we cover the biggest things, the things everyone has to deal with.

Some people have food problems/Fibro. They believe diet plays a key role in their Fibro. We get that. Maybe it does.

But we all have symptoms that are outside the "hallmark" designation. There is a thread up right now about visual disturbances. This happens to be interesting to me because it's something I personally deal with all the time, and it really impacts my life. Maybe it's Fibro-related. Fine.

But what if I (and others) started posting thread after thread, day in and day out, month after month, about this; and bringing it into the conversation when people are talking about problems that have nothing to do with it; and even, when new people post for the first time, asking them if they have a sensitivity to patterns and whether they are doing all they can to make sure their vision is all right. Don't you think you'd get tired of it? And don't you think some of those new people would think, "Hey, I just got here and these people are judging me, insinuating that I don't take care of my eyes? What do my eyes have to do with anything? I'm gone!"?

That's why this whole issue came to a head. Plus, as Sherrine said, there is the issue of space taken up on the forum, which our administrator pays for.

So use the HealingWell email feature if you want to have these in-depth conversations outside our major focus. I would, in a heartbeat. I have. There's nothing shady or risky about it. There's a great, wide internet with endless websites which you can surf to your heart's content, and then discuss what you find. That's a much more efficient way to zero in on what you want to, anyway. Try the remedies you like. Discuss them amongst yourselves.

Debbie

First of all, fibromyalgia is not an inflammatory illness. We have people with fibro who have been tested for inflammation and their blood work come back fine. I do have inflammation due to several inflammatory illness I have and what I eat has never affected me one way or the other. If one is affected by food, there is most likely something else going on besides fibro. There has been no proof that food affects people with fibromyalgia. I have a link I can share but I'm on my iPad right now. I'll put it in this post tomorrow.

As far as discussing a food...that's how this all started. I'd have to give this a lot of thought and also discuss this with Acheybody and Getting By since we all agreed that stopping the food talk was necessary. People seem to take advantage and don't know when to stop. We need to be here for the numerous other problems in the life of a fibromite.

I have been a moderator on this forum for a very long time. I have spent eight years on this forum, made over 13,000 post in trying to help our members and I would love it if people trusted me and also Acheybody and Getting By with the decision we made. We really do know what we are doing and what is best for the fibromyalgia forum. The reaction of a few has caused me excessive stress and I sure don't think I deserve it.

It's nearly 8:30 PM and I haven had dinner yet. I'm tired and need to eat since I'm diabetic.

Sherrie

I'm not sure whether to put more fuel into the fire... but what the.....

I guess everything started with my post being block. I definitely have no objection (I HAVE NO OBJECTION) of that.

However, all i wanted to point out was, as part of fibro, IBS is a common symptoms (not everyone will have them but it is common enough that many FMS patients will have some form of IBS or another.) I think that is a fair, balanced comment.

All I wanted to share was an article from out local national news syndicate ABC (like BBC, BCB, not sure what's the equaivalent int USA) had an article with some specialist on panel talk about wheat intolerant.

I need to point out that I DO NOT EVOCATE for GLUTEN FREE diet. All I merely mentioned was, it was a coincident that since I have taken most of my wheat related diet off our daily meal, my IBS is under control.

Again, I do see there are quite a few Gluten related articles in the front page of the forum lately, to me, it's just the flavour of the month. Some times, we've got whole lot more pages about Cymbalta, or Lyrica, or tramadol. And they are topics that has been heavily discussed.

There are two things we want to decide here, yes, multiple posting of similar topic is somewhat annoying. At the same time, if it's the things that is in everyone's current mind, is it right to say, wait, you're talking too much about this topic, let's move on.

In my short time here, I've seen some interesting developments. 1. A lot I mean A LOT of FMS patients are very diet conscious. They to do more posting when there are dietary topics. Drugs are overrated. Everyone needs to find their own drugs that work for them, usually you'll see no more than 8 responses per thread on drugs, unless it's something very contentious.

Anyway, I think we should stop all these bickering, it's stressing everyone especially the mod. We don't want to be the one to be blamed for them having some major flare over the weekend.

Have a good weekend everyone. Rest well.

Post Edited By Moderator (Acheybody) : 6/8/2013 12:18:23 AM (GMT-6)