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Posted 10/14/2013 4:19 PM (GMT -5)
Hi all!
My name is Dea and I'm new on this forum. I was reading another thread and had two questions.

First, I have Fibro was diagnosed name years ago. I was wondering, I know keeping a schedule sleep, awake, day work, etc... Is very important at least it is for my body. Sleep, I read someone post they have nights where the next morning they feel like they haven't slept in days. Me too. I also have another weird thing. If I mess up my schedule and don't get sleep, it will take me days to get caught up. I can't just go to bed a little earlier and be fine the next morning. Is this something others have as well???

Second, 4th of July 2000. My husband rushed me to the ER because I got very sick and by that day I was the sickest I'd ever been. Turned out to be Lyme disease. We got to the ER at 8am exactly, I barely remember anything accept the doctor saying they were keeping me. That was at 4:30. By then I had been sick so long my kidneys shut down. I ended up spending 5 days in the ICU.

I know Lyme can have lasting effects. But is it considered a chronic disease once you have it? We don't know about me because my symptoms are very similar to Fibro so trying to tell the difference is impossible.

Thanks!
Dea
Posted 10/14/2013 5:06 PM (GMT -5)
Hi Dea,

Welcome to the fibromyalgia forum. I am glad that you found us.

I think with fibromyalgia, you can sleep hours, but not get the right quality of sleep. I find ambien helps me to get that, but I am trying to get off of it because I have been on it for years. But I notice the difference in whether I take it or not. I am more tired when I don't.

I don't know anything about lyme disease. But we have an awesome thread called "fibro 101" where you can read all the symptoms and learn other important stuff. We also have an awesome Lymes forum. You might want to ask some questions over there. And there may be others here that can answer your question. Sadly to say, I am not up on it.

I hope that you feel better soon. I have found that scheduling my meals helps me. But that could be because of my blood sugars. It keeps them more even. I hope that you get some answers.

Hugs, Karen...
Posted 10/15/2013 2:36 AM (GMT -5)
Welcome Dea! I bet you have trouble figuring out the difference of fibro and Lyme disease symptoms. I finally have a fairly good sleep regimine. I use to take ambien, but I got to dependent on them. It was hard coming off them. I do take an antidepressent at night that helps me sleep. I use to feel tired in the day time, but once I got a better sleep habits it improved.

Post Edited (ak angel) : 10/15/2013 10:55:07 PM (GMT-6)

Posted 10/15/2013 8:55 AM (GMT -5)
Hi Dea and welcome! I don't have Lymes but I have found that when you have other diseases, the often mimic each other and it can be hard to tell which one is causing the problems. I take Gabapentin for Neuropathy and it helps me sleep. Maybe the next time you go to your doctor, you should ask him about Lyme and if it is a chronic disease. Because of brain fog, I find what helps me is writing in a journal every day. I take it with me when I go and see the doctor and we discuss it. Plus, it becomes part of my medical records.
Posted 10/16/2013 3:29 PM (GMT -5)
Hi, Dea, and welcome!  Well, according to the Mayo Clinic, if you get the appropriate treatment, you usually can recover completely.  It doesn't say that everyone can, though.  It might be worth it to be checked out by a Lyme Literate Doctor.  They specialize in Lyme disease and our Lyme forum here on HealingWell can help you in that area.  There are a lot of similarities between these two illnesses.

 

Below is the link all about Lyme disease from the Mayo Clinic.

 

http://www.mayoclinic.com/health/lyme-disease/DS00116

 

Be sure to read Fibro 101...the first thread on the forum.  There are  links to good info about fibro and you will learn a lot there.  Good starting links for you would be called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  You just might see yourself there.  All of Fibro 101 is good so do read it.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

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