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Posted 10/28/2013 12:21 AM (GMT -5)
Hi all,

I happened to come across this site in my search for Fibromyalgia support groups and noticed that it seemed very active here which is awesome! So I thought I would introduce myself! I'm 25 and from Ohio. I work full-time in billing and my husband and I live with our dog and just generally enjoy life. He is type 1 diabetic so we make a nice pair. :-) I was diagnosed at 18 after 2 years of testing and have lived with the diagnosis ever since. The last seven years of my life have been wonderful but also a lesson in major pain and a lot of depression and emotional pain due to my illnesses. I am lucky to have a very supportive family and friends, and I try to enjoy my life like any other 25-year-old. I am on here because I am currently trying to find alternative ways to deal with Fibro & manage my pain. My regimen was working for about three years but it is time to reset my body and I'm in the process of trying to wean off my current medication. I've lived with fibromyalgia for almost ten years and I have tried so many remedies and medications, diets and exercise plans, and it is still a learning process so I'm here to learn all I can and provide support to others. I hope everyone is well!
Posted 10/28/2013 1:45 AM (GMT -5)
Welcome Juno!om! It's great to hear from someone that knows what they want! Sounds like your eager to help yourself find a better plan. Hopefully you will be able to find that right treatment for yourself. I have found this forum so helpful to me. I had tried multiple meds only to get very dependent on them. So I was desperate to find new treatments ideas like you.

I read post daily and educated myself with new ways to help fibro. Getting the support here has been wonderful, especially when your lacking it from home. I finally have a working program to help my fibro. The more simple I keep it, the more manageable the fibro is. I do the following for my fibro- limit stress, light exercise, eat healthy, magnesium, vitamin D, calcium, remron, heat and subutex for pain.

The best tool I learned here was do things in moderation. I use to try to do all my chores in one day or a few hrs. Then after all that my muscles would be depleted. Wow, what a difference when doing things in moderation.

I hope to see you around more. Just remember it does take time perfect a treatment plan. So try not to get discorage when one doesn't work. I look at it as a trial and error way of treatment. Lol I am sure you have some great ideas you can share with us. We all learn from each other.
Posted 10/28/2013 9:55 AM (GMT -5)
Welcome Juno! You are indeed lucky to have supportive family and friends. My brother is the only person for me who tries to understand.

Everyone here is so caring and supportive.
Posted 10/28/2013 2:41 PM (GMT -5)
Welcome Junosmom
Posted 10/28/2013 3:15 PM (GMT -5)
Welcome! I am only just newly diagnosed and a new member as well. I LOVE the information here in this forum - amazing!!! :)

Jen :)
Posted 10/28/2013 6:13 PM (GMT -5)
Hi Juno,

Sorry for the reason you are here.
I`m a new member, too, and in good company. Reading and writing in a foreign language, but with people who understands me well otherwise.

Hugs
Posted 10/28/2013 8:00 PM (GMT -5)
HI, Juno'smom, and welcome!  I used to live in Ohio but now I'm a Floridian.  Love it!

 

Some good alternative things are gentle daily exercise like walking, swimming, and yoga.  Also gentle massages have helped people.  I use a neuromuscular massage therapist who has been trained to massage clients with fibro.  This has helped me quite a bit.  Keeping active helps because if you sit or lay too long you will be stiff as a board and have more pain.  I use some supplements that help, too.  I use vitamin D3 and magnesium malate for pain and fatigue, krill oil, folic acid, and CoQ10.  I also pace myself when doing things and that helps me a lot. 

 

With fibro, it's a trial and error type thing to find what helps you be in control of the pain.  I wish there were several things that always helped us but that's not what happens.  We have to just keep trying things until we get the relief we need to be in control and then we can have a full and enjoyable life in spite of this illness.

 

Be sure to read Fibro 101...the first thread on the forum.  There are links to good info about fibro and you will learn a lot there. 

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

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