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fibro vs. neuro pain

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Fibromyalgia
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Posted 5/30/2015 10:20 AM (GMT -5)
Went to a new doc a week ago (rheumy) and she didn't even do much of an exam. She increased my Lyrica, which is ultimately what i wanted (pain is down so much i am thrilled).

When I asked her what my diagnosis was, she said "well, lots of nerve pain (ok knew that)". I then asked whether I had fibro, and she says "well, there's some of that mixed in" What????? How does that work?

I have been finding a REALLY tough time finding a doc who treats fibro around here…it's like they are scared of it, like it's the plague or something. Anyone else having that problem? Is it insurance related? I was referred to 3 docs, 2 said they don't treat fibro "anymore", and the 3rd said it would be nearly 6 months to get a new patient appt, so I should see his partner (who just came to the practice), so I saw the new doc….he was awful. 1st appt, he said fibro, did blood work, hand x-rays, etc, showed NO inflammation, etc. Second appt, he decides it's totally different and it's inflammation in the tendons in my hands??? With no testing at all. And changed meds.

Not going back. What about the new doc though? thoughts?



Thanks,

Sunny
Posted 5/30/2015 11:36 AM (GMT -5)
Hi Sunny, It gets so frustrating when a doctor says one thing one day and another on another. I totally feel your frustration... Until you find another doc, I would stick with the one who says there is some mixed in there. At least she treats it... And helped with the lyrica.

I have wondered how you are doing. Sounds like things may be getting better. I am glad that the lyrica helps... Fibro has a lot to do with nerve and muscle pain, so I guess they would go hand in hand.

I Hope you have a good weekend...

Hugs, Karen...
Posted 5/30/2015 4:22 PM (GMT -5)
Lol she sounds like she had no idea what she was talking about, just hedging her comments so she sounded competent. I'm so sorry, I hate when I get a dud doctor!
Posted 5/30/2015 5:45 PM (GMT -5)
Things are getting better…as far as fibro is concerned. Most of the time things are ok w/ that.

Other things…not too good. Just spent several days in the hospital for a kidney infection that got out of control. Also treated me w/ iron infusions because they saw my iron was so low (still have to have the testing to figure out if there's a GI bleed). Got the infection in control, but oral antibiotics seem to be the enemy (possibly). Vomit after taking them about 1/2 the time. The other 1/2 of the time, no vomiting. Switched meds even. Never had vomiting before this, at least not except for things like the flu or whatever!

But, i also have chronic nausea…just had autonomic function testing last week to help determine the cause of that. Have had bouts of nausea daily for about 4 months, but no vomiting at all. Not sure if somehow this infection triggered vomiting? But I only vomit w/in about 45 minutes of taking the antibiotic.

Minor ostomy troubles…some days it doesn't want to have any output at all and others are fairly "normal" Either way, feel tied to the house or somewhere that I know there is a bathroom close, just in case things get crazy.

Severely depressed and lonely to top it off. Can't take this anymore.

Sorry for venting. Sometimes I just need to attempt to get it all out.

Thanks for listening…


Sunny.
Posted 6/2/2015 6:45 PM (GMT -5)
Sorry things are so difficult Sunny. I hope that by now things are better. Keep me posted. Pop into "depression" if you would like...

Thinking about you...

Hugs, Karen...
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