Posted 6/14/2015 10:31 PM (GMT -5)
Agreed.
I always speak up when going into a flare but....
And, I too learned to go into the bedroom and take a time out/ away. My husband stopped questioning my behavior, I don't think he likes it much but the stupid squabbling is less. He was not capable of dealing with this at the beginning, helping our daughter understand because he doesn't, etc. But, he shops and cooks. He even does dishes :)
This invisible syndrome has taught me to have a lot more empathy for others. I don't think it's given me a lot more patience but it allows me to take in everyone's thoughts and come to middle ground or, agree to disagree. These are large gifts.
I was always a control freak. I tried to control fibro but failed. This is not to say it controls me but that we compromise. I have areas in my ADL's that I control. Other areas I let go and accept.
Example; yesterday I cleaned and put away a lot of clutter. Prior to Fibro there would never have been clutter in my house! Today, there is much left that needs doing, but, Fibro wins not me. Tomorrow I will do a bit more and call my paid helper.
Together, me and my Fibro have come to an often uneasy, agreement.